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Table 2 Mean (and standard deviation, 95% confidence intervals) of EPP-QoL domain scores separated by degree of impact of EPP (determined by DLQI score)

From: Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL

 

DLQI Impact

N

Mean

Std. Deviation

95% Confidence Interval for Mean

 

Lower

Upper

EPP Symptoms

Moderate effect

23

46.6

22.1

37.0

56.2

Very large effect

45

73.1

21.9

66.5

79.7

Extremely large effect

8

82.9

20.3

65.9

99.8

EPP Wellbeing

Moderate effect

23

17.4

7.9

14.0

20.8

Very large effect

45

13.3

7.6

11.0

15.6

Extremely large effect

8

14.6

5.9

9.7

19.5

  1. N.b. Data from the only patient classified as Small effect on DLQI is not shown