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Table 2 Data saturation matrix

From: A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy

Caregiver impact

Participant number*

 

C102

C101

C103

C104

C105

C106

C108

C107

C109

C110

Physical

 Tiredness/exhaustion

P

    

S

S

 

S

 

 Lifting/carrying

S

S

 

S

      

 Back pain/aches

S

S

  

S

     

 Sleep

P

S

  

P

     

Emotional

 Upset/sad

 

S

P

 

S

S

S

S

 

S

 Feeling hopeless

S

S

S

  

S

S

S

S

S

 Stress

 

S

S

   

S

P

S

S

 Worry/anxiety

S

S

  

S

 

S

P

S

 

 Guilt

 

S

  

S

     

 Loneliness/isolation

      

S

  

S

 Positive emotions

S

   

S

 

S

S

 

S

Time-related

 No time for self

P

    

S

S

   

 Appointments/admin

 

S

  

S

 

S

 

S

S

Work

 Time off work

 

S

  

S

    

P

 Reducing hours/stopping hours

P

   

S

 

S

S

  

 Flexible/home working

 

P

      

S

 

 Conversations with colleagues

 

S

        

Relationships

 With partner

S

P

    

S

 

S

P

 Friendships

 

P

  

S

  

S

S

S

Social

 Cancelling plans

S

S

        

 Limited social life/hobbies

 

S

  

S

 

S

  

S

 Difficulty finding childcare

        

S

S

 Difficulty socialising with child

     

S

S

S

  

 Needing to plan ahead

     

S

    
  1. *Participant numbers are presented in the order the interviews were conducted. S = spontaneously reported impacts, P probed impacts. Impacts were considered spontaneously reported unless explicitly probed (e.g. If they were asked about any social impacts and they reported cancelling plans, then ‘cancelling plans’ was considered a spontaneously reported impact. Bold letters indicate the first spontaneous report