Table 3 Data saturation matrix for symptoms and impacts
Participant numbera | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|
C102 | C101 | C103 | C104 | C105 | C106 | C108 | C107 | C109 | C110 | |
SYMPTOMS | ||||||||||
Muscle-related | ||||||||||
Muscle weakness | S | S | S | S | S | S | S | |||
Muscle breakdown | S | S | S | S | S | S | ||||
Physical function | ||||||||||
Difficulty walking distances | S | S | S | S | S | S | S | S | S | |
Slower walking | S | S | S | S | S | S | ||||
Difficulty with stairs | P | S | S | P | S | S | ||||
Difficulty getting up off the floor | S | S | S | S | S | S | S | |||
Poor balance | S | S | P | |||||||
Difficulty lifting/carrying | P | P | P | S | S | S | S | P | S | |
Difficulty writing/drawing | S | S | S | S | S | P | S | |||
Difficulty with fine motor skills | P | P | S | S | S | S | P | |||
Fatigue/tiredness | S | S | S | S | S | S | S | S | ||
Cognitive-behavioural | ||||||||||
Learning/memory difficulties | S | S | P | S | S | S | P | P | P | |
Difficulty focusing/concentrating | S | S | S | P | P | S | P | |||
Communication/language difficulties | P | S | S | S | ||||||
Aggressive behaviour | S | S | S | S | ||||||
Autistic/ADHD spectrum behaviours | S | S | S | S | S | S | S | |||
Pain/discomfort | ||||||||||
Lower limb pain/discomfort | S | S | S | P | P | P | ||||
Upper body pain/discomfort | S | P | ||||||||
IMPACTS | ||||||||||
Daily activities | ||||||||||
School/nursery | S | S | S | S | S | S | S | S | S | S |
Self-care | S | S | S | S | S | S | S | S | S | |
Social activities | ||||||||||
Difficulty keeping up with others | S | S | S | S | S | S | S | S | ||
Missing out/avoiding social situations | S | S | S | P | S | S | S | |||
Emotional wellbeing | ||||||||||
Upset/sadness | S | S | S | S | S | S | S | |||
Frustration | S | S | S | S | S | S | ||||
Anxiety | S | P | S | S | S | |||||
Confidence/self-esteem | P | S | S | P | S | |||||