From: Content validation of a self-report daily diary in patients with sickle cell disease
Item Content | Number of Items |
---|---|
Items Related to SCPC (only completed if as SCPC was experienced in the past 24 h) | |
Observed signs of SCPC | 1 item |
Duration of SCPC | 2 items |
Level of pain related to SCPC | 2 items |
Healthcare utilization due to SCPC | 1 item |
Medication use due to SCPC | 2 items |
Impact of SCPC on the following domains: | |
Work or school | 2 items |
Activities of daily living | 1 item |
Impact on social and recreational activities | 1 item |
Sleep | 1 item |
Fatigue | 1 item |
Emotional difficulty | 1 item |
Items Unrelated to SCPC (only completed if no SCPC experienced in past 24 h) | |
Signs of pain outside of an SCPC | 1 item |
Interference of SCD with sleep | 1 item |
Impact of SCD on fatigue | 1 item |
Impact of SCD on emotional difficulty | 1 item |