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Table 8 Summary of contents of the SCPD-S

From: Content validation of a self-report daily diary in patients with sickle cell disease

Item Content

Number of Items

Items Related to SCPC (only completed if as SCPC was experienced in the past 24 h)

Observed signs of SCPC

1 item

Duration of SCPC

2 items

Level of pain related to SCPC

2 items

Healthcare utilization due to SCPC

1 item

Medication use due to SCPC

2 items

Impact of SCPC on the following domains:

 Work or school

2 items

 Activities of daily living

1 item

 Impact on social and recreational activities

1 item

 Sleep

1 item

 Fatigue

1 item

 Emotional difficulty

1 item

Items Unrelated to SCPC (only completed if no SCPC experienced in past 24 h)

Signs of pain outside of an SCPC

1 item

Interference of SCD with sleep

1 item

Impact of SCD on fatigue

1 item

Impact of SCD on emotional difficulty

1 item

  1. Abbreviations: SCD sickle cell disease, SCPC sickle cell pain crisis, SCPD-S Sickle-Cell Pain Diary-Self Report