Table 5 Samples of items added to the SCPD-S v.01
From: Content validation of a self-report daily diary in patients with sickle cell disease
Item added to SCPD-S v.01 | Rationale for Addition | Patient Quotes (on tested item) |
|---|---|---|
How much emotional difficulty did you experience due to your sickle cell pain crisis during the past 24 hours (for example, stress, anxiety, sadness, and depression)? | Five out of 12 patients reported that mental and emotional health were important concepts to ask about in a daily diary on sickle cell pain and crises. | You could go with the emotional aspect as well, were you able to—I don’t, I guess I don’t know, maybe if I thought about my emotions at that time but I probably don’t…but I think maybe just even seeing where a person’s state of mind is? Either in or outside of the crisis, might help reveal… some information, I guess, if you were to pose questions towards your overall state of mind. (007) |
Did the pain crisis last all of the past 24 hours or less than the past 24 hours? | Seven out of 12 patients expressed a preference for a question that would capture whether the sickle cell pain crisis had lasted more than 24 h so that they could skip filling out the number of hours under those circumstances. | We’re in pain so much we just don’t keep track of the time. (001) |