Table 1 Patient characteristics
From: Content validation of a self-report daily diary in patients with sickle cell disease
Patients | Round 1 Hybrid Interviews SCPD-S v0.1 n = 12 | Round 2 Hybrid Interviews SCPD-S v0.2 n = 6 | Total Sample n = 18 |
|---|---|---|---|
Age | |||
Mean (SD) | 33 (15.5) | 20.5 (9.8) | 28.8 (14.8) |
Range | 12–50 | 13–40 | 12–50 |
Gender | n (%) | n (%) | n (%) |
Male | 10 (83.3%) | 3 (50%) | 13 (72.2%) |
Female | 2 (16.7%) | 3 (50%) | 5 (27.8%) |
Education | |||
< High school | 4 (33.3%) | 4 (66.7%) | 8 (44.4%) |
High school/GED | 1 (8.3%) | – | 1 (5.6%) |
Some college | 1 (8.3%) | 2 (33.3%) | 3 (16.7%) |
Associate’s degree | 2 (16.7%) | – | 2 (11.1%) |
Bachelor’s degree | 4 (33.3%) | – | 4 (22.2%) |
Post-graduate degree | – | – | – |
Race | |||
African-American | 11 (91.7%) | 6 (100%) | 17 (94.4%) |
Hispanic | 1 (8.3%) | – | 1 (0.55%) |
US Region of Residence | |||
Northeast | 4 (33.3%) | – | 4 (22.2%) |
Pacific | 1 (8.3%) | – | 1 (5.6%) |
Southeast | 7 (58.3%) | 1 (16.7%) | 8 (44.4%) |
Midwest | – | 5 (83.3%) | 5 (27.8%) |
# of SCPCs in the past 12 months | |||
Mean (SD) | 6.2 (4.4) | 8.2 (6.8) | 6.8 (5.2) |
Range | 1–16 | 1–20 | 1–20 |
Reported healthcare utilization during SCPC | |||
Every time or almost every time | 3 (25%) | 2 (33.3%) | 5 (27.8%) |
Sometimes but not all of the time | 7 (58.3%) | 4 (66.7%) | 11 (61.1%) |
Treat at home/see regular doctor | 2 (16.7%) | – | 2 (11.1%) |