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Table 4 PAH-SYMPACT™ responses

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension – Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with chronic thromboembolic pulmonary hypertension (CTEPH): a qualitative interview study

 

Response, n (%)

In the past 24 h …Did you use oxygen?

No

Yes

   
 

4 (33)

8 (67)

   

In the past 24 h …

0 (no symptom at all)

1 (mild)

2 (moderate)

3 (severe)

4 (very severe)

“How would you rate your shortness of breath?”

2 (17)

3 (25)

7 (58)

0

0

“How would you rate your fatigue?”

3 (25)

1 (8)

7 (58)

1 (8)

0

“How would you rate your lack of energy?”

3 (25)

5 (42)

4 (33)

0

0

“How would you rate the swelling in your ankles or legs?”

5 (42)

6 (50)

1 (8)

0

0

“How would you rate the swelling in your stomach area?”

7 (58)

2 (17)

1 (8)

2 (17)

0

“How would you rate your cough?”

10 (83)

0

2 (17)

0

0

“How would you rate your heart palpitations (heart fluttering)?”

9 (75)

1 (8)

2 (17)

0

0

“In the past 24 h … How would you rate your rapid heartbeat?”

7 (58)

1 (8)

4 (33)

0

0

“How would you rate your chest pain?”

10 (83)

2 (17)

0

0

0

“How would you rate your chest tightness?”

8 (67)

3 (25)

1 (8)

0

0

“How would you rate your lightheadedness?”

4 (33)

7 (58)

1 (8)

0

0

In the previous 7 days …

Yes, with no difficulty at all

Yes, with a little difficulty

Yes, with some difficulty

Yes, with much difficulty

No, not able at all

“Were you able to walk slowly on a flat surface?”

6 (50)

4 (33)

2 (17)

0

0

“Were you able to walk quickly on a flat surface?”

3 (25)

3 (25)

2 (17)

2 (17)

2 (17)

“Were you able to walk uphill?”

2 (17)

2 (17)

3 (25)

5 (42)

0

“Were you able to carry things?”

3 (25)

2 (17)

3 (25)

4 (33)

0

“Were you able to do light indoor household chores?”

6 (50)

3 (25)

2 (17)

1 (8)

0

“Were you able to wash or dress yourself?”

9 (75)

2 (17)

0

1 (8)

0

In the previous 7 days …

Not at all

A little bit

Some

Quite a bit

Very Much

“How much did you need help from others?”

5 (42)

3 (25)

3 (25)

1 (8)

0

In the previous 7 days …

Yes, with no difficulty at all

Yes, with a little difficulty

Yes, with some difficulty

Yes, with much difficulty

No, not able at all

“Were you able to think clearly?”

8 (67)

2 (17)

2 (17)

0

0

In the previous 7 days …

Not at all

A little bit

Somewhat

Very

Extremely

“How sad did you feel?”

7 (58)

2 (17)

1 (8)

2 (17)

0

“How worried did you feel?”

5 (42)

4 (33)

1 (8)

2 (17)

0

“How frustrated did you feel?”

4 (33)

4 (33)

3 (25)

0

1 (8)

  1. PAH-SYMPACT™, Pulmonary Arterial Hypertension – Symptoms and Impact
  2. A score of 0 in the previous 24 h (symptoms items) or in the previous 7 days (impact items)
  3. A score of 1 or more in the previous 24 h (symptoms items) or in the previous 7 days (impact items)