Skip to main content

Table 2 Summary of endorsed symptom concepts

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension – Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with chronic thromboembolic pulmonary hypertension (CTEPH): a qualitative interview study

Concept

Endorsement, n (%)

Spontaneous

Through probing

Total

Shortness of breath

12 (100)

0

12 (100)

Fatigue

6 (50)

5 (42)

11 (92)

Lightheadedness

3 (25)

7 (58)

10 (83)

Rapid heartbeat

4 (33)

5 (42)

9 (75)

Lack of energy

2 (17)

7 (58)

9 (75)

Swelling in ankles or legs

3 (35)

4 (33)

7 (58)

Swelling in stomach area

2 (17)

4 (33)

6 (50)

Cough

3 (25)

3 (25)

6 (50)

Heart palpitations

0

5 (42)

5 (42)

Chest pain

2 (17)

3 (25)

5 (42)

Chest tightness

2 (17)

2 (17)

4 (33)

Fainting

3 (25)

0

3 (25)

Body pain or ache

2 (17)

0

2 (17)

Coughing up blood

2 (17)

0

2 (17)

Headache

1 (8)

0

1 (8)

Balance issues

1 (8)

0

1 (8)

Dizziness

1 (8)

0

1 (8)

Legs feeling heavy

1 (8)

0

1 (8)

Purple lips

1 (8)

0

1 (8)