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Table 1 Participant sociodemographic and clinical characteristics

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension – Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with chronic thromboembolic pulmonary hypertension (CTEPH): a qualitative interview study

Characteristic

N = 12

Age (years), mean (SD)

62.5 (15.2)

Gender, n

 Male

4 (33)

 Female

8 (67)

Ethnicity, n

 Hispanic or Latino

2 (17)

 Not Hispanic or Latino

8 (67)

 No response

2 (17)

Racial backgrounda, n

 Black or African American

4 (33)

 White

7 (58)

 Other (participant specified “Hispanic”)

1 (8)

Marital status, n

 Single

1 (8)

 Married

7 (58)

 Divorced

3 (25)

 Widowed

1 (8)

Employment status, n

 Employed, full-time

2 (17)

 Retired

8 (67)

 Disabled

2 (17)

Highest level of education, n

 Secondary/high school

3 (25)

 Some college

5 (42)

 College degree

4 (33)

Time since diagnosis of CTEPH (years)b, mean (SD)

4.2 (3.7)

Most recent WHO functional classb, n

 I

3 (25)

 II

6 (50)

 III

3 (25)

Current treatmenta,b, n

 Oxygen

7 (58)

 Diuretics

10 (83)

 Anticoagulants

12 (100)

 Soluble guanylyl cyclase stimulator

7 (58)

 Endothelin receptor antagonists

5 (42)

 Fibrinogen

1 (8)

 Phosphodiesterase type 5 inhibitors

4 (33)

 Prostacyclin/prostacyclin analogues/prostacyclin receptor agonists

3 (25)

Interventiona,b, n

 BPA only

3 (25)

 PEA surgery only

6 (50)

 BPA and PEA surgery

1 (8)

 Neither BPA nor PEA surgery

2 (17)

Comorbid conditionsa,b, n

 None

1 (8)

 Anxiety

2 (17)

 Chronic obstructive pulmonary disease

2 (17)

 Depression

2 (17)

 Diabetes with chronic complications

4 (33)

 Hypertension

3 (25)

 Obstructive sleep apnea

3 (25)

 Rheumatological disease

1 (8)

 Other health condition(s)c

11 (92)

  1. BPA Balloon pulmonary angioplasty, CTEPH Chronic thromboembolic pulmonary hypertension, PEA Pulmonary endarterectomy, SD Standard deviation, WHO World Health Organization
  2. aResponses were not mutually exclusive
  3. bInformation was captured by the clinical sites using a case report form
  4. cOther health conditions, each reported by n = 1 participant unless otherwise specified, were splenectomy (n = 2), chronic anemia, idiopathic pulmonary arterial hypertension, coronary artery disease, connective tissue disease, transient ischemic attack, thyroid dysfunction, obesity, osteoarthritis, prostate cancer, renal insufficiency, scoliosis, paralyzed hemidiaphragm (right), and spherocytosis