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Table 4 Comparison of Top Priorities of PLWD with Rating as “Very Important” by Other Stakeholders

From: Engaging multi-stakeholder perspectives to identify dementia care research priorities

Priority Research Topic

PLWD

(n = 23)

Percentage

Caregiver

(n = 101)

Percentage

HCP

(n = 62)

Percentage

p-value from Fisher’s Exact Test

Services and supports that are needed to help people living with dementia continue living in their own homes.

91.3

72.0

66.7

0.07

Understand how to respect individual choices regarding quality of life versus prolonging life.

82.6

61.1

66.0

0.37

Identify the skills and knowledge that the healthcare team needs to provide better care for people living with dementia and their families.

78.3

65.2

62.8

0.74

Identify ways to support people living with dementia and their families to make advance care plans early in the diagnosis.

78.3

62.0

48.0

0.12

Information and resources needed to help individuals and their families following a diagnosis of dementia.

73.9

74.2

78.6

0.88

How an early diagnosis benefits the person with the diagnosis and their family.

73.9

66.0

71.4

0.66

How to manage anxiety, fear, and other emotions related to a diagnosis of dementia.

73.9

58.3

69.1

0.25

Ways to support communication and decisions about medications and care among people living with dementia, their families, and health care providers.

73.9

58.1

52.9

0.31

Ways to support people living with dementia who are unable to make decisions about their health and care.

73.9

53.8

56.9

0.04

  1. Bolded text represents research topics among top priorities for PLWD and at least 1 other stakeholder group
  2. PLWD Person Living with Dementia, HCP health and social care professionals, researchers, other