From: Engaging multi-stakeholder perspectives to identify dementia care research priorities
Priority Research Topic | PLWD (n = 23) Percentage | Caregiver (n = 101) Percentage | HCP (n = 62) Percentage | p-value from Fisher’s Exact Test |
---|---|---|---|---|
Services and supports that are needed to help people living with dementia continue living in their own homes. | 91.3 | 72.0 | 66.7 | 0.07 |
Understand how to respect individual choices regarding quality of life versus prolonging life. | 82.6 | 61.1 | 66.0 | 0.37 |
Identify the skills and knowledge that the healthcare team needs to provide better care for people living with dementia and their families. | 78.3 | 65.2 | 62.8 | 0.74 |
Identify ways to support people living with dementia and their families to make advance care plans early in the diagnosis. | 78.3 | 62.0 | 48.0 | 0.12 |
Information and resources needed to help individuals and their families following a diagnosis of dementia. | 73.9 | 74.2 | 78.6 | 0.88 |
How an early diagnosis benefits the person with the diagnosis and their family. | 73.9 | 66.0 | 71.4 | 0.66 |
How to manage anxiety, fear, and other emotions related to a diagnosis of dementia. | 73.9 | 58.3 | 69.1 | 0.25 |
Ways to support communication and decisions about medications and care among people living with dementia, their families, and health care providers. | 73.9 | 58.1 | 52.9 | 0.31 |
Ways to support people living with dementia who are unable to make decisions about their health and care. | 73.9 | 53.8 | 56.9 | 0.04 |