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Table 2 Clinical Characteristics of Children with CD

From: A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

N 2–4 years 5–7 years 8–11 years 12–17 years Total Child Sample
3 6 9 20 38
Time since diagnosis (months)
 Mean (SD) 9.3 (1.53) 11.0 (13.73) 12.9 (9.71) 48.0 (44.17) 30.8 (37.24)
 Median 9.0 6.0 11.0 47.0 13.0
 Min - Max 8–11 2–38 2–30 2–168 2–168
 Missing n 0 0 0 0 0
CGI- CD severity (Last 30 days) – Clinician-reported
 Remission 0 (0.00) 0 (0.00) 1 (11.11) 3 (15.00) 4 (10.53)
 Mild 3 (100.00) 4 (66.67) 4 (44.44) 5 (25.00) 16 (42.11)
 Moderate 0 (0.00) 1 (16.67) 3 (33.33) 12 (60.00) 16 (42.11)
 Severe 0 (0.00) 0 (0.00) 1 (11.11) 0 (0.00) 1 (2.63)
 Very Severe 0 (0.00) 1 (16.67) 0 (0.00) 0 (0.00) 1 (2.63)
Hospitalizations in past 12 months
 1 0 1 1 3 5
 2 0 1 0 0 1
 0 3 4 8 17 32
Hemoglobin levels
 Mean (SD) 13.9 (0.35) 11.8 (1.03) 12.6 (1.52) 13.0 (0.99) 12.8 (1.19)
 Median 13.9 11.4 13.0 13.1 13.0
 Min - Max 14–14 11–13 10–14 11–15 10–15
 Missing n 1 1 0 1 3
Surgery for CD?
 Yes 0 (0.00) 1 (16.67) 1 (11.11) 7 (35.00)e 9 (23.68)
 No 3 (100.00) 5 (83.33) 8 (88.89) 13 (65.00) 29 (76.32)
Surgery/Procedure typee
 Fecal Resection 0 (0.00) 0 (0.00) 0 (0.00) 1 (5.00) 1 (2.63)
 Endoscopy 0 (0.00) 1 (16.67) 1 (11.11) 5 (25.00) 7 (18.42)
Comorbidities
 Anemia 0 (0.00) 3 (50.00) 4 (44.44) 6 (30.00) 13 (34.21)
 Nutritional disorders 0 (0.00) 1 (16.67) 1 (11.11) 2 (10.00) 4 (10.53)
 Psychiatric disorder 0 (0.00) 1 (16.67) 2 (22.22) 1 (5.00) 4 (10.53)
 Anal fissure/abscesses 0 (0.00) 1 (16.67) 0 (0.00) 3 (15.00) 4 (10.53)
 Cardiac disease 0 (0.00) 0 (0.00) 1 (11.11) 0 (0.00) 1 (2.63)
 Other 0 (0.00) 2 (33.33) 3 (33.33) 4 (20.00) 9 (23.68)
Child Treatments
Current Treatment
 Biologics / Anti-TNF 0 5 6 11 22
 Vitamins and Probiotics 3 3 2 6 14
 Diet 3 1 2 6 12
 Aminosalicylate 1 0 3 7 11
 Immunomodulator 0 0 3 6 9
 Proton-pump inhibitor 0 1 3 3 7
 Corticosteroid Glucocorticoids 0 1 1 3 5
 OTC Pain Killer 0 2 1 2 5
 Stool softener or Laxative 0 2 1 0 3
 Gastrointestinal Agent 0 0 0 3 3
 Antibiotics 1 1 0 0 2
 Antiemetic 0 0 1 1 2
 Cognitive Behavioral Therapy 0 0 1 0 1
 Other 0 0 0 1 1
 Enteral Nutritional Therapy 0 0 0 0 0
Previous Treatment
 Biologics / Anti-TNF 0 0 1 2 3
 Vitamins and Probiotics 0 0 1 1 2
 Diet 0 0 1 2 3
 Aminosalicylate 0 2 1 6 9
 Immunomodulator 0 1 1 2 4
 Proton-pump inhibitor 0 0 1 0 1
 Corticosteroid Glucocorticoids 0 2 4 9 15
 OTC Pain Killer 0 1 0 0 1
 Stool softener or Laxative 0 1 2 0 3
 Gastrointestinal Agent 0 0 0 0 0
 Antibiotics 0 0 1 0 1
 Antiemetic 0 1 1 0 2
 Cognitive Behavioral Therapy 0 0 0 0 0
 Other 0 0 0 0 0
 Enteral Nutritional Therapy 0 1 0 0 1
  1. eSurgery data are missing for a 15-year-old participant