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Table 1 Demographic Characteristics of Children and Parent Participantsa

From: A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

  2–4 years 5–7 years 8–11 years 12–17 years Total Child Sample Total Parent Sample
Child Parent Child Parent Child Parent Child Parent
N 3 3 6 6 9 9 20 38b 18
Age         n/a   
Mean (SD) 3.3 (0.58) 40.7 (1.53) 5.5 (0.84) 37.2 (4.36) 9.7 (1.12) 40.8 (6.18) 14.4 (1.39)   11.0 (4.19) 39.6 (4.02)
Median 3.0 41.0 5.0 36.5 9.0 40.0 14.0   12.0 39.2
Min - Max 3–4 39–42 5–7 32–45 8–11 31–49 12–17   3–17 31–49
Missing n 0 0 0 0 0 1 0   0 1
Gender (n %)         n/a   
Female 2 (66.67) 2 (66.67) 3 (50.00) 6 (100.00) 5 (55.56) 7 (77.78) 9 (45.00)   19 (50.00) 15 (83.33)
Male 1 (33.33) 1 (33.33) 3 (50.00) 0 (0.00) 4 (44.44) 2 (22.22) 11 (55.00)   19 (50.00) 3 (16.67)
Ethnicity (n %)         n/a   
 Hispanic/Latino 0 (0.00) 0 (0.00) 1 (16.67) 1 (16.67) 0 (0.00) 0 (0.00) 2 (10.00)   3 (7.89) 1 (5.56)
 Not Hispanic/Latino 3 (100.00) 3 (100.00) 5 (83.33) 5 (83.33) 9 (100.00) 9 (100.00) 18 (90.00)   35 (92.11) 17 (94.44)
Race         n/a   
 White/Caucasian 2 (66.67) 2 (66.67) 2 (33.33) 2 (33.33) 7 (77.78) 7 (77.78) 14 (70.00)   25 (65.79) 11 (61.11)
 Black/African American 1 (33.33) 1 (33.33) 3 (50.00) 3 (50.00) 1 (11.11) 1 (11.11) 2 (10.00)   7 (18.42) 5 (27.78)
 American Indian/ Alaska Native 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 1 (5.00)   1 (2.63) 0 (0.00)
 Asian 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 0 (0.00) 1 (5.00)   1 (2.63) 0 (0.00)
 Otherc 0 (0.00) 0 (0.00) 1 (16.67) 1 (16.67) 1 (11.11) 1 (11.11) 2 (10.00)   4 (10.53) 2 (11.11)
Child’s current health (self/parent report)   n/a   n/a   n/a   n/a   n/a
 Excellent 0 (0.00)   1 (16.67)   0 (0.00)   3 (15.00)   4 (10.53)  
 Very Good 0 (0.00)   0 (0.00)   2 (22.22)   2 (10.00)   4 (10.53)  
 Good 3 (100.00)   3 (50.00)   6 (66.67)   12 (60.00)   24 (63.16)  
 Fair 0 (0.00)   2 (33.33)   1 (11.11)   3 (15.00)   6 (15.79)  
 Poor 0 (0.00)   0 (0.00)   0 (0.00)   0 (0.00)   0 (0.00)  
Child’s current CD severity (self/parent report)   n/a   n/a   n/a   n/a   n/a
 Remission 0 (0.00)   0 (0.00)   0 (0.00)   1 (5.00)   1 (2.63)  
 Mild 2 (66.67)   2 (33.33)   5 (55.56)   7 (35.00)   16 (42.11)  
 Moderate 1 (33.33)   3 (50.00)   4 (44.44)   11 (55.00)   19 (50.00)  
 Severe 0 (0.00)   1 (16.67)   0 (0.00)   1 (5.00)   2 (5.26)  
 Very severe 0 (0.00)   0 (0.00)   0 (0.00)   0 (0.00)   0 (0.00)  
CD flare in past 2 weeks           
 Yes 0 (0.00)   3 (50.00)   3 (33.33)   9 (45.00)   15 (39.47)  
 No 3 (100.00)   3 (50.00)   6 (66.67)   11 (55.00)   23 (60.53)  
Severity of most recent flare   n/a   n/a   n/a   n/a   n/a
 Very mild 0 (0.00)   0 (0.00)   0 (0.00)   2 (10.00)   2 (5.26)  
 Mild 2 (66.67)   1 (16.67)   1 (11.11)   2 (10.00)   6 (15.79)  
 Moderate 1 (33.33)   2 (33.33)   7 (77.78)   10 (50.00)   20 (52.63)  
 Severe 0 (0.00)   1 (16.67)   1 (11.11)   2 (10.00)   4 (10.53)  
 Very severe 0 (0.00)   1 (16.67)   0 (0.00)   1 (5.00)   2 (5.26)  
 Missing 0 (0.00)   1 (16.67)   0 (0.00)   3 (15.00)   4 (10.53)  
Highest level of education n/a   n/a   n/a   n/a n/a n/a  
 Did not complete high school   0 (0.00)   0 (0.00)   0 (0.00)     0 (0.00)
 High School Diploma/GED   0 (0.00)   1 (16.67)   2 (22.22)     3 (16.67)
 4-Year College Degree   3 (100.00)   2 (33.33)   3 (33.33)     8 (44.44)
 Graduate Degree or Higher   0 (0.00)   2 (33.33)   4 (44.44)     6 (33.33)
Other   0 (0.00)   1 (16.67)   0 (0.00)     1 (5.56)
Employment status n/a   n/a   n/a   n/a n/a n/a  
 Employed Full-Time   1 (33.33)   4 (66.67)   7 (77.78)     12 (66.67)
 Employed Part-Time   0 (0.00)   0 (0.00)   2 (22.22)     2 (11.11)
 Homemaker   1 (33.33)   2 (33.33)   0 (0.00)     3 (16.67)
 Student   0 (0.00)   0 (0.00)   0 (0.00)     0 (0.00)
 Retired   0 (0.00)   0 (0.00)   0 (0.00)     0 (0.00)
 Unemployed   0 (0.00)   0 (0.00)   0 (0.00)     0 (0.00)
 Other   0 (0.00)   0 (0.00)   0 (0.00)     0 (0.00)
 Missing   1 (33.33)   0 (0.00)   0 (0.00)     1 (5.56)
  1. a Data for children < 12 years old were provided by parents
  2. b Data on the children (n = 7) of parent participants were collected but their children did not participate in the interviews. cOther: n = 1 patient participant identified as half White/Caucasian and Black/African American; n = 1 patient participant report Hispanic; n = 1 patient participant identified as White/Caucasian and Indian; n = 1 patient participant did not wish to answer; n = 1 parent participant identified as half White/Caucasian and Black/African American; n = 1 parent participant reported Hispanic