Concept confirmation of the Treatment Administration Satisfaction Questionnaire (TASQ) in rare paroxysmal nocturnal hemoglobinuria

Journal of Patient-Reported Outcomes

Table 1 Demographic characteristics of participants in the content validity study of the TASQ-IV and TASQ-SC measures

Demographic characteristic	Statistic (N = 10)
Age (years)
N	10
Mean (SD)	51.7 (15.3)
Median (IQR)	53 (39–65)
Range	28–74
Sex
Female	6
Male	4
Race
White/Caucasian	10
Education
High school diploma	1
Some college/certification	2
College/university degree	2
Graduate degree	5
Work status
Employed full-time	4
Employed part-time	1
Retired	2
Unemployed	1
Other	2

Categorical variables were described by the frequency and percentage of each response choice, with missing data being included in the calculation of percentage. Continuous variables were described by their frequency, mean, standard deviation, median, quartiles 1 and 3, extreme values (minimum and maximum values) and frequency and percentage of missing values
IQR interquartile range, IV intravenous, PNH paroxysmal nocturnal hemoglobinuria, SC subcutaneous, SD standard deviation, TASQ Treatment Administration Satisfaction Questionnaire