Table 1 Item pool

Part

Item number

Included in final item set?

Questionnaire of origin

Domain

Brazilian Portuguese version

English ad hoc translation

I

2

NO

core

Anxiety

Me senti preocupado com meu futuro

I felt worried about my future

I

3

NO

core

Anxiety

Me senti amedrontado

I felt frightened

I

4

NO

core

Anxiety

Me senti com medo

I felt scared

I

13

YES

core

Anxiety

Me senti emotionalmente fora do meu normal

I felt emotionally out of my normal

I

14

YES

core

Anxiety

Me senti inquieto

I felt restless

I

15

YES

core

Anxiety

Me senti nervoso

I felt nervous

I

16

YES

core

Anxiety

Me senti ansioso

I felt anxious

I

25

YES

core

Anxiety

Me senti a ponto de entrar em pânico

I felt about to panic

I

29

YES

disease specific

Anxiety

Me senti em estado de choque

I felt in shock

I

61

NO

new

Anxiety

Me senti impaciente

I felt impatient

I

93

NO

core

Anxiety

Me senti agitado

I felt agitated

I

5

YES

core

Behaviour

Me senti irritado

I felt annoyed

I

6

NO

core

Behaviour

Me senti mais quieto do que o normal

I felt more quiet than usual

I

9

NO

core

Behaviour

Me senti com dificuldade de me concentrar

I felt hard to concentrate

I

11

NO

core

Behaviour

Tive mudanças em meu apetite

I had changes in my appetite

I

18

NO

core

Behaviour

Me senti mais fechado

I felt introverted

I

22

YES

core

Behaviour

Tive dificuldades em realizar meu trabalho e outras tarefas semelhantes

I had difficulties doing my job and other similar tasks

I

24

YES

core

Behaviour

Tive dificuldades em realizar tarefas de casa

I had difficulties doing domestic work

I

30

NO

new

Blood pressure related

Fiquei com medo da pressão alta o tempo todo na cabeça

I had the fear of high blood pressure all of the time in the head

I

57

NO

new

Blood pressure related

Pensei que seria melhor se não soubesse que tenho pressão alta

I thought it would be better if I didn’t know I have high blood pressure

I

90

NO

new

Blood pressure related

Tive sintomas de pressão alta

I had symptoms of high blood pressure

I

37

YES

disease specific

Body Perception

Me senti doente

I felt sick

I

38

YES

disease specific

Body Perception

Tive a sensação de que havia algo errado com meu corpo

I had a feeling something was wrong with my body

I

42

NO

disease specific

Body Perception

Me senti como se meu corpo fosse uma máquina que não funciona

I felt like my body was a non-working machine

I

46

YES

disease specific

Body Perception

Me senti como um estranho em meu próprio corpo

I felt like a stranger in my own body

I

53

YES

disease specific

Body Perception

Me senti como se qualquer coisa pudesse me afetar

I felt like anything could affect me

I

64

NO

new

Body Perception

Senti que não tenho saúde

I felt that I am not healthy

I

69

NO

new

Body Perception

Me senti fraco

I felt weak

I

43

NO

disease specific

Emotional

Me senti azedo

I felt sour

I

44

NO

disease specific

Emotional

Me senti zangado

I felt angry

I

49

NO

disease specific

Emotional

Chorei mais do que de costume

I cried more than usual

I

63

NO

new

Emotional

Me senti desequilibrado

I felt unbalanced

I

74

NO

new

Emotional

Me senti preso

I felt trapped

I

76

NO

new

Emotional

Me senti orgulhoso

I felt proud

I

78

YES

new

Emotional

Me senti com raiva

I felt angry

I

83

NO

new

Emotional

Me senti envergonhado

I felt ashamed

I

39

YES

disease specific

Fear and Powerlessness

Me senti fora de controle

I felt out of control

I

40

YES

disease specific

Fear and Powerlessness

Me senti com o corpo frágil

I felt my body fragile

I

48

YES

disease specific

Fear and Powerlessness

Me senti sem forças

I felt strengthless

I

50

NO

disease specific

Fear and Powerlessness

Me senti sem sorte

I felt unlucky

I

51

YES

disease specific

Fear and Powerlessness

Me senti vulnerável

I felt vulnerable

I

58

NO

disease specific

Fear and Powerlessness

Tive medo de fazer esforço físico

I was afraid of doing exercises

I

66

NO

new

Fear and Powerlessness

Me senti sem saber o que esperar

I didn’t know what to expect

I

73

NO

new

Fear and Powerlessness

Me senti com pavor

I felt terrified

I

77

NO

new

Fear and Powerlessness

Me senti apreensivo

I felt apprehensive

I

79

NO

new

Fear and Powerlessness

Me senti impotente

I felt helpless

I

92

YES

new

Fear and Powerlessness

Me senti assustado

I felt scared

I

31

YES

disease specific

Introvert

Me senti inseguro

I felt insecure

I

32

YES

disease specific

Introvert

Me senti com pena de mim mesmo

I felt sorry for myself

I

33

YES

disease specific

Introvert

Me senti em uma situação desesperadora

I felt in a desperate situation

I

34

YES

disease specific

Introvert

Fiquei com humor muito variável

I was in a very variable mood

I

54

YES

disease specific

Lifestyle

Mudei meus hábitos de atividade física

I changed my exercising habits

I

56

YES

disease specific

Lifestyle

Mudei meus hábitos alimentares

I changed my eating habits

I

72

YES

new

Negative impact on relations

Me senti sendo julgado

I felt that I was being judged

I

75

YES

new

Negative impact on relations

Me senti sendo forçado a fazer coisas que não quero

I felt being forced to do things I don’t want to do

I

84

YES

new

Negative impact on relations

Me senti controlado pelos outros

I felt that I was controlled by others

I

86

YES

new

Negative impact on relations

Me senti excluído

I felt excluded

I

88

NO

new

Neutral impact on relations

Me senti diferente

I felt different

I

41

NO

disease specific

Perception of age

Senti que a idade chegou

I felt that old age has come

I

47

NO

disease specific

Perception of age

Me senti mais velho do que sou

I felt older than I am

I

85

NO

new

Postitive impact on relations

Me senti apoiado

I felt supported

I

87

NO

new

Postitive impact on relations

Me senti cuidado

I felt being cared for

I

89

NO

new

Postitive impact on relations

Me senti importante

I felt important

I

65

NO

new

Results of diagnosis

Me senti em dúvida

I felt in doubt

I

80

NO

new

Results of diagnosis

Me senti surpreso

I felt surprised

I

1

YES

core

Sense of dejection

Me senti preocupado

I felt worried

I

10

YES

core

Sense of dejection

Me senti com a sensação de que o tempo não passava

I felt that time was not passing

I

12

YES

core

Sense of dejection

Me senti triste

I felt sad

I

19

YES

core

Sense of dejection

Me senti sem iniciativa

I felt without initiative

I

20

NO

core

Sense of dejection

Me senti sem vontade

I felt unwilling

I

21

NO

core

Sense of dejection

Me senti deprimido

I felt depressed

I

62

YES

new

Sense of dejection

Me senti culpado

I felt guilty

I

67

YES

new

Sense of dejection

Me senti desmotivado

I felt unmotivated

I

68

YES

new

Sense of dejection

Me senti desestimulado

I felt discouraged

I

70

NO

new

Sense of dejection

Me senti frustrado

I felt frustrated

I

71

YES

new

Sense of dejection

Me senti indiferente

I felt indifferent

I

82

YES

new

Sense of dejection

Me senti chateado

I felt upset

I

91

NO

new

Sense of dejection

Me senti culpado por não cuidar de mim mesmo como deveria

I felt guilty for not taking care of myself as I should

I

94

YES

core

Sense of dejection

Me senti incomodado

I felt bothered

I

27

YES

core

Sexual

Tive menos desejo sexual

I had less sexual desire

I

59

YES

disease specific

Sexual

Me senti insatisfeito com minha vida sexual

I felt dissatisfied with my sex life

I

8

YES

core

Single Items

Fuji dos meus pensamentos me ocupando com tarefas práticas do dia-a-dia

I ran away from my thoughts, busy with day-to-day practical tasks

I

28

YES

core

Single Items

Dias faltados no trabalho

Days missed at work

I

35

YES

disease specific

Single Items

Me senti mais cansado do que de costume

I felt more tired than usual

I

36

YES

disease specific

Single Items

Guardei meus pensamentos só pra mim

I kept my thoughts just for myself

I

45

YES

disease specific

Single Items

Me senti como se estivesse no vazio

I felt like I was in the void

I

52

YES

disease specific

Single Items

Me senti fragilizado

I felt weak

I

55

YES

disease specific

Single Items

Pensei na morte

I thought about death

I

60

YES

new

Single Items

Pensei na minha fé

I thought of my faith

I

81

YES

new

Single Items

Me senti tranquilo

I felt calm

I

95

YES

new

Single Items

Você tem pressão alta?

Do you have a high blood pressure?

I

7

NO

core

Sleep

Dormi mal à noite

I slept badly at night

I

17

NO

core

Sleep

Tive dificuldade de pegar no sono

I had difficulty falling asleep

I

23

NO

core

Sleep

Acordei cedo demais

I woke up too early

I

26

NO

core

Sleep

Passei a maior parte do tempo acordado

I spent most of the time awake

Part

Item number

Included in final version

Questionnaire of origin

Domain

Brazilian Portuguese version

English ad hoc translation

II

108

YES

disease specific

Empathy

meu sentimento de responsabilidade pela minha família ficou

my sense of responsibility for my family became …

II

111

YES

disease specific

Empathy

minha compreensão dos problemas alheios ficou

my understanding of other people’s problems became …

II

113

YES

disease specific

Empathy

a minha capacidade de ouvir problemas alheios ficou

my ability to hear other people’s problems became …

II

96

YES

core

Existential values

eu fiquei pensando na vida

I kept thinking about life...

II

97

YES

core

Existential values

minha alegria de viver ficou

my joy of living became …

II

103

YES

core

Existential values

a minha visão do futuro ficou

my vision of the future became …

II

104

YES

core

Existential values

a minha sensação de bem-estar ficou

my sense of well-being became …

II

105

YES

core

Existential values

a minha percepção sobre a vida ficou

my perception of life became …

II

106

YES

core

Existential values

o valor que dou a vida ficou

the value I give in life became …

II

125

YES

new

Existential values

me sinto como se não fosse mais normal

I feel like I’m not normal anymore...

II

126

YES

new

Existential values

me sinto como se não fosse mais o mesmo

I feel like I’m not the same anymore...

II

132

NO

new

Hypertension related

minha ansiedade com relação a pressão alta ficou

my anxiety about high blood pressure got...

II

133

NO

new

Hypertension related

penso que eu não tenho pressão alta

I think I don’t have high blood pressure...

II

107

YES

disease specific

Impulsive

a minha energia ficou

my energy became …

II

109

YES

disease specific

Impulsive

tenho aproveitado a vida

I have enjoyed life...

II

112

YES

disease specific

Impulsive

me sinto impulsivo

I feel impulsive...

II

114

YES

disease specific

Impulsive

a minha vontade de me envolver com algo novo ficou

my desire to get involved with something new became …

II

115

YES

disease specific

Impulsive

a minha vontade de me envolver com algo arriscado ficou

my desire to get involved with something risky got …

II

116

YES

disease specific

Impulsive

tenho feito coisas que utrapassam meus limites

I’ve been doing things that push my limits...

II

117

YES

new

Patient Role

frequento consultas médicas

I go to doctor’s appointments...

II

118

YES

new

Patient Role

faço exames

I do laboratory tests...

II

119

NO

new

Patient Role

me sinto fazendo mal para mim mesmo

I feel bad for myself...

II

120

YES

new

Patient Role

me sinto com dificuldades em seguir orientações médicas

I have difficulty following medical advices...

II

121

YES

new

Patient Role

me sinto cuidando de mim mesmo

I feel taking care of myself...

II

122

YES

new

Patient Role

tomo medicamentos

I take medicines...

II

123

YES

new

Patient Role

me sinto dependente de remédios

I feel dependent on medicines...

II

124

YES

new

Patient Role

me sinto confiante em orientações médicas

I feel confident in medical advice...

II

99

YES

core

Personal Relations

a minha relação com a minha família ficou

my relationship with my family became …

II

100

YES

core

Personal Relations

a minha relação com meus amigos ficou

my relationship with my friends became …

II

101

YES

core

Personal Relations

a minha relação com outras pessoas ficou

my relationship with other people became …

II

127

YES

new

Preoccupation with health

me sinto preocupado com sintomas de pressão alta

I feel worried about symptoms of high blood pressure...

II

128

YES

new

Preoccupation with health

me sinto preocupado com meus hábitos e estilo de vida

I feel worried about my habits and lifestyle...

II

129

YES

new

Preoccupation with health

me sinto preocupado com os tratamentos

I feel worried about the treatments...

II

98

NO

core

Relaxed/Calm

me senti tranquilo

I felt tranquil...

II

102

NO

core

Relaxed/Calm

me senti calmo

I felt calm...

II

110

NO

core

Relaxed/Calm

me sinto aliviado

I feel relieved...

II

130

YES

new

Single Items

meu desempenho no trabalho ficou

my work performance became …

II

131

YES

new

Single Items

minha prática sexual ficou

my sexual practice became …