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Table 2 Percentage of participants reporting comprehensibility of the title, instructions, items, and response options

From: The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children

  Adult version Child version Examples
Title 57% 20% “Reading ‘atopic eczema’ I would ask myself what that means […].”, ID1, adult
“This ‘atopic eczema’ I don’t know.”, ID8, adult
“I know the term, this ‘atopic eczema’. But I think for the general public, this is too medical. I would rather say ‘skin disease’., ID3, parent
Instruction 100% 100% “For me, this is really clear.”, ID4, adult
Item 1 100% 100% “It is very comprehensible, this question.”, ID3, parent
Item 2 100% 100% “This [question] was very well asked.”, ID8, adult
Item 3 71% 60% “Intensely is somehow a thing of feeling. It was itchy that she cried, but not that she scratches herself raw. Well, it was strong, but it might have been even stronger.”, ID12, parent
Item 4 100% 100% “I think this question is comprehensible to every person affected by eczema because sleep problems are very present when having these complaints.”, ID2, adult
Item 5 86% 60% “Yes, this question was hard to answer, day-to-day activities with a baby, this is limited. […] I didn’t know what to tick because some things such as changing the child was really hard or bathing the child was a disaster because scratching started immediately. However, I could go for a walk with him, which is a day-to-day activity as well. […] It would be good to distinguish between day-to-day activities regarding care, rituals and sleep and leisure activities, social life etc.”, ID7, parent
Item 6 71% 80% “Somehow phrased in a difficult way. […] I would make the question easy.”, ID3, parent
Item 7 71% 40% “I do not fully understand what ‘acceptable’ means. I have to accept it either way because I have to live with the disease. I really don’t know what to answer. […] I think, with ‘acceptable’ you assume that you have a choice. […] But having atopic eczema is a fact that I have to accept.”, ID2, adult
“Do I want to accept the disease? I don’t want to, I have to.”, ID5, adult
Response options 100% 100% “I like that.”, ID8, adult