Characteristic | Mean (SD) | Range |
---|---|---|
Age at diagnosis, years | 6.1 ± 3.5 | 1–15 |
Duration of disease, months | 69.6 ± 43.6 | 4–192 |
Frequency | ||
Area of involvement | ||
0%–25% | 65.9% (n = 81) | |
25%–50% | 21.1% (n = 26) | |
50%–75% | 8.1% (n = 10) | |
75%–100% | 4.9% (n = 6) | |
Anatomical parts of involvement | ||
Head/Face/Neck | 59.3% (n = 73) | |
Trunk | 49.6% (n = 61) | |
Arms (not including hands) | 41.5% (n = 51) | |
Hands | 36.6% (n = 45) | |
Legs | 62.6% (n = 77) | |
Genitalia | 33.3% (n = 41) | |
Skin typea | ||
I | 0.8% (n = 1) | |
II | 11.5% (n = 14) | |
III | 30.3% (n = 37) | |
IV | 37.7% (n = 46) | |
V | 13.1% (n = 16) | |
VI | 6.6% (n = 8) | |
% received mental health intervention (therapy or psychiatric medication) | 16.3% (n = 20) |