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Table 1 Caregiver interview structure

From: Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer’s disease: a qualitative study to identify meaningful symptoms

Section

Structure

Description

Time (mins)

1

Structured

Introduction to the interview and review of consent form. Participants provided verbal consent and demographic data.

15

2

Open-ended

Discussion of the day-to-day symptoms and challenges faced when caring for someone with DS-AD.

30

3

Structured

In-depth review and feedback on a subset of symptoms including each of their descriptors. Participants were given the opportunity to provide additional items and suggest changes to unclear items.

30

4

Open-ended

Discussion of the most important symptoms and challenges to the individual participant with respect to DS-AD.

15