TY - JOUR AU - Knox, Kari AU - Stanley, Justin AU - Hendrix, James A. AU - Hillerstrom, Hampus AU - Dunn, Taylor AU - Achenbach, Jillian AU - Chicoine, Brian A. AU - Lai, Florence AU - Lott, Ira AU - Stanojevic, Sanja AU - Howlett, Susan E. AU - Rockwood, Kenneth PY - 2021 DA - 2021/01/11 TI - Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer’s disease: a qualitative study to identify meaningful symptoms JO - Journal of Patient-Reported Outcomes SP - 5 VL - 5 IS - 1 AB - As life expectancy of people with Down syndrome (DS) increases, so does the risk of Alzheimer’s disease (AD). Identifying symptoms and tracking disease progression is especially challenging whenever levels of function vary before the onset of dementia. Goal Attainment Scaling (GAS), an individualized patient-reported outcome, can aid in monitoring disease progression and treatment effectiveness in adults with DS. Here, with clinical input, a validated dementia symptom menu was revised to facilitate GAS in adults living with Down Syndrome-associated Alzheimer’s disease (DS-AD). SN - 2509-8020 UR - https://doi.org/10.1186/s41687-020-00278-7 DO - 10.1186/s41687-020-00278-7 ID - Knox2021 ER -