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Table 4 SEQ-G-CSF Item History

From: Development and content validation of the Satisfaction and Experience Questionnaire for Granulocyte Colony-Stimulating Factor (SEQ-G-CSF)

Version 1 Instrument

Revisions

Rationale for Change

Title: Satisfaction and Experience Questionnaire Core (SEQ-CORE)

Granulocyte Colony-Stimulating Factor (G-CSF)

No change

• Include version number in title.

Instructions: Please read each question and select one response regarding the most recent G-CSF session, if you are currently taking G-CSF.

Revised

• Patients were not familiar with the term G-CSF. Recommend explaining what G-CSF stands for, methods of administration, and time frame (referring to the most recent treatment) for answering the questions.

Item 1

Overall, how tolerable was the G-CSF prophylaxis you received?

Revised

• Patients preferred direct and personal language.

• Patients preferred “preventive” rather than “prophylaxis.”

• Add reference to time frame, referring to the most recent treatment.

• Revise response categories to match concept. For example, “tolerate very poorly,” “tolerate poorly,” etc.

• Change chronological order: renumbered as item 2.

• Recommend replacing throughout “G-CSF treatment” to “preventive treatment.”

Item 2

How convenient or inconvenient was the G-CSF treatment to schedule?

No change

• Add reference to time frame, referring to the most recent treatment.

• Change response option 3 to “A little inconvenient” for ease of scoring.

• Change chronological order: renumbered as Item 3.

Item 3

How convenient or inconvenient was the G-CSF treatment to receive?

Revised

• Patients preferred rewording the item for easier readability.

• Add reference to time frame, referring to the most recent treatment.

• Change response option 3 to “A little inconvenient” for ease of scoring.

• Change chronological order: renumbered as Item 6.

Item 4

How bothered are you by how long it took to receive the G-CSF treatment?

Revised

• Patients preferred rewording the item for easier readability.

• Add reference to time frame, referring to the most recent treatment.

• Recommend revising to 5-point Likert scale to match other items.

• Change chronological order: renumbered as Item 7.

Item 5

How convenient or inconvenient was travelling to receive the G-CSF treatment?

Revised

• Patients recommended wording changes.

• Add reference to time frame, referring to the most recent treatment.

• Change response option 3 to “A little inconvenient” for ease of scoring.

Item 6

How convenient was it to make travel arrangements to receive the G-CSF treatment?

Revised

• Add reference to time frame, referring to the most recent treatment.

• Change response option 3 to “A little inconvenient” for ease of scoring.

• Change chronological order: renumbered as Item 4.

Item 7

How much time did you gain due to less administration frequency of G-CSF?

Revised

• Patients had difficulty understanding the question/item concept.

• Omit from final SEQ-G-CSF.

Item 8

How much time did the G-CSF treatment take away from your daily activities (household duties, recreational activities, etc.)?

Revised

• Add reference to time frame, referring to the most recent treatment.

• Revise to 5-point Likert scale to match other items.

• Change chronological order: renumbered as Item 9.

Item 9

Did you take the most recent prescribed G-CSF treatment?

Revised

• Recommend adding a clarifying statement with “No” response.

• Yes (Skip to question 2)

• No (Continue to question 1a)

• Change chronological order: renumbered as Item 1.

Item 9a

If “No” to Question 9, why did you miss the most recent G-CSF treatment?

Revised

• Add reference to time frame, referring to the most recent treatment.

• Remove skip statement as it is already included in Item 1.

• Remove open-ended option.

• Patients provided response options.

• Change chronological order: renumbered as Item 1a.

Item 9b

If “No” to Question 9, how concerned are you that you missed the G-CSF treatment?

Revised

• Remove skip statement as it is already included in Item 1.

• Add reference to time frame, referring to the most recent treatment.

• Revise to 5-point Likert scale to match other items.

• Change chronological order: renumbered as Item 1b.

Item 10

How satisfied or dissatisfied are you with the G-CSF treatment?

Revised

• Recommend adding “overall” to the item to distinguish from “most recent” items.

• Change response option 3 to “A little dissatisfied” for ease of scoring.

Item 11

Overall, would you recommend the G-CSF treatment to another patient?

Revised

• Recommend replacing “G-CSF treatment” with “method of administration”.

• Change chronological order: renumbered as Item 13.

Item 12

Overall, how would you rate the experience with the G-CSF treatment?

Revised

• Revise to 5-point Likert scale to match other items.

• Change chronological order: renumbered as Item 11.

Item 13

How would you rate the overall change in your health condition since you began the G-CSF treatment?

Revised

• Revise to 5-point Likert scale to match other items.

• Change chronological order: renumbered as Item 12.

 

New

• Add new item (Item 8) to capture “satisfaction” related to time spent receiving treatment.

  1. Except for the introductory text, the G-CSF abbreviation was removed from the final SEQ-G-CSF