Table 2 Demographic and clinical characteristics of concept elicitation patient interviewees
Characteristic | Patients (N = 27) |
|---|---|
Sex, male, n (%) | 11 (40.7) |
Age, yrs, mean (SD) [range] | 44.6 (15.01) [22–74] |
Age first diagnosed with HCM, yrs, mean (SD); median [range] | 32.2 (17.11); 27 [0–72] |
Country, n (%) | |
UK | 8 (38.1) |
France | 6 (22.2) |
Italy | 7 (25.9) |
US | 6 (22.2) |
Employment status, n (%) (patient-reported) | |
Employed, full-time | 12 (44.4) |
Employed, part-time | 5 (18.5) |
Homemaker | 1 (3.7) |
Student | 1 (3.7) |
Retired | 5 (18.5) |
Disabled | 1 (3.7) |
Othera | 2 (7.4) |
Is HCM the subject’s primary cardiovascular diagnosis? (clinician-reported) | |
Yes, n (%) | 22 (81.5) |
How long has the subject been diagnosed with HCM? (clinician-reported) | |
Yrs, mean (SD) | 9.3 (8.24) |
HCM obstruction status, n (%) (clinician- or patient-reported)b | |
Obstructiveb | 11 (40.7) |
Nonobstructive | 13 (48.1) |
Missing | 3 (11.1) |
Health conditions, n (%)c (patient-reported) | |
None | 7 (25.9) |
Anemia | 5 (18.5) |
Angina | 5 (18.5) |
Anxiety | 11 (40.7) |
Arthritis | 2 (7.4) |
Cancer | 2 (7.4) |
COPD/emphysema | 1 (3.7) |
Depression | 7 (25.9) |
Diabetes | 1 (3.7) |
Hypertension | 8 (29.6) |
Myocardial infarction | 2 (7.4) |
Atrial fibrillation | 5 (18.5) |
Severity of HCM symptoms as rated “today”, n (%) (patient-reported) | |
Very mild | 4 (15.4) |
Mild | 8 (30.8) |
Moderate | 12 (46.2) |
Severe | 1 (3.8) |
Very severe | 1 (3.8) |
Overall health, n (%) (patient-reported) | |
Excellent | 2 (7.4) |
Very good | 2 (7.4) |
Good | 17 (63.0) |
Fair | 5 (18.5) |
Poor | 1 (3.7) |