Illustrative Quotes | ||||
---|---|---|---|---|
Assessment | Adults | Adolescents | Adults | Adolescents |
Smallest Improvement with which Participants Would Be Satisfied or Content | N = 19 | N = 9 | … any improvement is good … | I feel like if I was a 5, if I went down that would be cool, but getting to a 5 would be—I mean it’s like any improvement would be meaningful. |
1 point | 11% | 22% | ||
2 points | 32% | 44% | ||
3 points | 26% | 22% | ||
4 points | 16% | – | ||
5 points | 11% | – | ||
6 points | – | 11% | ||
8 points | 5% | – | ||
Level of Improvement that Would Be Meaningful | N = 17 | N = 10 | [An improvement of one point]: Maybe I might sleep a little bit better or maybe I have sleep for more hours without dealing with a medication. [An improvement of two points] means I could go to sleep better and that means I don’t have to wake up in the middle of the night knowing that I’m scratching myself or that means I can put makeup on, and it will cover my face. | I just feel like the one-point difference is kind of understandable for just a weekly basis. [An improvement of three points] I think I would definitely recognize that, because, I mean, like it’s just a big change from waking up a couple times to being awake for the duration of the night. |
1 point | 76% | 80% | ||
2 points | 18% | 10% | ||
3 points | 6% | 10% | ||
Participants’ ratings for “No or Minimal sleep disturbance | N = 18 | N = 10 | Well, if my sleep was like a one, I would say that’s still pretty good, that the itch is not there and if I wake up it’s not going to keep me up, it won’t keep me up. | I’m sleeping at a one or a two, and just being to sleep well because that’s like a basic thing that everybody else can do. It’s just something that I wish I had the privilege to be able to just sleep through the night without waking up from my neck hurts or thinking about how my skin is bothering. I kind of just wish I could sleep like a normal person. |
0 | 11% | 10% | ||
1 | 29% | 30% | ||
2 | 41% | 40% | ||
3 | 24% | 10% | ||
4 | – | 10% |