User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic

Thestrup Hansen, Stine; Kjerholt, Mette; Friis Christensen, Sarah; Brodersen, John; Hølge-Hazelton, Bibi

doi:10.1186/s41687-020-00256-z

Journal of Patient-Reported Outcomes

Table 1 Patients, nurses and haematologists participants included in the qualitative study

From: User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic

Patients
	Gender	Age	Diagnosis	Intervention	Consulted by	Study phase
P1^a	Male	74	Polycythemia vera	Control	N1	F1
P2	Female	73	Waldenström macroglobulinemia	Control	H2	F1
P3^a	Male	85	Myelodysplastic Syndrome	PROMs available	H1	F1
P4	Female	71	Follicular lymphoma	Control	H3	F1
P5	Female	74	Myeloproliferative neoplasms	PROMs available	H4	F1
P6^a	Male	68	Chronic lymphocytic leukemia	PROMs not available	N3 + H5	F1
P7^a	Male	78	Myelodysplastic Syndrome	Control	H6	F1
P8^a	Male	72	Follicular lymphoma	PROMs available	H7	F1
P9^a	Male	71	Essential thrombocythemia	PROMs available	N4 + H8	F2
P10^a	Male	75	Myelofibrosis	PROMs available	H6	F2
P11^a	Male	74	Mantle cell lymphoma	PROMs not available	N7 + H9	F2
P12	Female	71	Waldenström macroglobulinemia	PROMs available	N6 + H10	F2
P13^a	Male	76	Chronic lymphocytic leukemia	PROMs available	H11	F2
P14^a	Female	77	Polycythemia vera	PROMs not available	H12	F2
P15	Male	83	Myelodysplastic Syndrome	PROMs available	N1	F2
P16^a	Female	70	Follicular lymphoma	PROMs not available	H13	F2
Nurses
	Gender	Experience as a nurse, years				Study phase
N1	Female	> 20 years				F1, F2, FG
N2	Female	> 15 years				F1, FG
N3	Female	> 10 years				F1
N4	Female	> 15 years				F2
N5	Female	> 10 years				FG
N6	Female	> 10 years				F2
N7	Female	< 5 years				F2
N8	Female	> 5 years				FG
N9	Female	> 10 years				FG (S)
Haematologists
	Gender	Educational status/ Haematological experience				Study phase
H1	Male	Medical assistan t > 5 years				F1
H2	Male	Medical assistant > 5 years				F1
H3	Female	Medical assistant > 10 years				F1
H4	Male	Senior registrar				F1
H5	Male	Medical assistant > 15 years				F1
H6	Male	Medical assistant > 10 years				F1, F2
H7	Male	Medical assistant < 5 years				F1
H8	Male	Medical assistant > 10 years				F2, INT
H9	Female	Medical assistant				F2
H10	Male	Medical assistant > 10 years				F2
H11	Female	Senior registrar				F2, INT
H12	Female	Senior registrar				F2
H13	Male	Senior registrar				F2
H14	Male	Medical assistant < 5 years				INT

F1 refers to data from Field Study 1, F2 refers to data from Field Study 2, FG refers to data from Focus Group Interview and INT refers to data from the in-depth interviews. ^a Patients accompanied by a relative (S) on sick leave.

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