TY - BOOK PY - 2019 DA - 2019// TI - Children: reducing mortality. Newsroom, Factsheets ID - ref1 ER - TY - BOOK AU - Roser, M. AU - Ritchie, H. PY - 2016 DA - 2016// TI - Burden of Disease ID - Roser2016 ER - TY - JOUR AU - Verstraete, J. AU - Ramma, L. AU - Jelsma, J. PY - 2020 DA - 2020// TI - Item generation for a proxy health related quality of life measure in very young children JO - Health and Quality of Life Outcomes VL - 18 UR - https://doi.org/10.1186/s12955-020-1271-1 DO - 10.1186/s12955-020-1271-1 ID - Verstraete2020 ER - TY - JOUR AU - Janssens, A. AU - Rogers, M. AU - Thompson Coon, J. AU - Allen, K. AU - Green, C. AU - Jenkinson, C. PY - 2015 DA - 2015// TI - A systematic review of generic multidimensional patient-reported outcome measures for children, part II: Evaluation of psychometric performance of english-language versions in a general population JO - Value in Health VL - 18 UR - https://doi.org/10.1016/j.jval.2015.01.004 DO - 10.1016/j.jval.2015.01.004 ID - Janssens2015 ER - TY - JOUR AU - Janssens, A. AU - Thompson Coon, J. AU - Rogers, M. AU - Allen, K. AU - Green, C. AU - Jenkinson, C. PY - 2015 DA - 2015// TI - A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics JO - Value in Health VL - 18 UR - https://doi.org/10.1016/j.jval.2014.12.006 DO - 10.1016/j.jval.2014.12.006 ID - Janssens2015 ER - TY - STD TI - U.S Department of Health and Human Services Food and Drug Administration, Center for Drug Evaluation and Research, Center for Biologics Evaluation and Research, Health C for D and R (2009). Guidance for industry. patient-reported outcome measures: use in medical product development to support labeling claims guidance for industry. Clinical/Medical Federal Register, 1–39 Available from: https://www.fda.gov/regulatory-information/search-fda-guidance-documents/patient-reported-outcome-measures-use-medical-product-development-support-labeling-claims. UR - https://www.fda.gov/regulatory-information/search-fda-guidance-documents/patient-reported-outcome-measures-use-medical-product-development-support-labeling-claims ID - ref6 ER - TY - BOOK PY - 2018 DA - 2018// TI - Discussion Document for Patient-Focused Drug Development Public Workshop on Guidance 3: Select, Develop or modify fit-for-purpose clinical outcome assessments ID - ref7 ER - TY - JOUR AU - Matza, L. S. AU - Patrick, D. L. AU - Riley, A. AU - Alexander, J. AU - Rajmil, L. AU - Pleil, A. PY - 2013 DA - 2013// TI - Pediatric patient-reported outcome instruments for research to support medical product labeling: Report of the ISPOR PRO good research practices for the assessment of children and adolescents task force JO - Value in Health VL - 16 UR - https://doi.org/10.1016/j.jval.2013.04.004 DO - 10.1016/j.jval.2013.04.004 ID - Matza2013 ER - TY - JOUR AU - Grange, A. AU - Bekker, H. AU - Noyes, J. AU - Langley, P. PY - 2007 DA - 2007// TI - Adequacy of health-related quality of life measures in children under 5 years old: systematic review JO - Journal of Advanced Nursing VL - 59 UR - https://doi.org/10.1111/j.1365-2648.2007.04333.x DO - 10.1111/j.1365-2648.2007.04333.x ID - Grange2007 ER - TY - JOUR AU - Eiser, C. AU - Morse, R. PY - 2001 DA - 2001// TI - Can parents rate their child’s health-related quality of life? Results of a systematic review JO - Quality of Life Research VL - 10 UR - https://doi.org/10.1023/A:1012253723272 DO - 10.1023/A:1012253723272 ID - Eiser2001 ER - TY - JOUR AU - Mokkink, L. B. AU - Terwee, C. B. AU - Patrick, D. L. AU - Alonso, J. AU - Stratford, P. W. AU - Knol, D. L. PY - 2010 DA - 2010// TI - The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments : An international Delphi study JO - Quality of Life Research VL - 19 UR - https://doi.org/10.1007/s11136-010-9606-8 DO - 10.1007/s11136-010-9606-8 ID - Mokkink2010 ER - TY - BOOK AU - Verstraete, J. AU - Jelsma, J. PY - 2017 DA - 2017// TI - Performance of the EQ-5D-Y proxy in very young children PB - EuroQoL Acad Meet Noordwijk CY - Netherlands ID - Verstraete2017 ER - TY - JOUR AU - Shiroiwa, T. AU - Fukuda, T. AU - Shimozuma, K. PY - 2019 DA - 2019// TI - Psychometric properties of the Japanese version of the EQ-5D-Y by self-report and proxy-report: reliability and construct validity JO - Quality of Life Research VL - 28 UR - https://doi.org/10.1007/s11136-019-02238-1 DO - 10.1007/s11136-019-02238-1 ID - Shiroiwa2019 ER - TY - JOUR AU - Ravens-Sieberer, U. AU - Wille, N. AU - Badia, X. AU - Bonsel, G. AU - Burström, K. AU - Cavrini, G. PY - 2010 DA - 2010// TI - Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study JO - Quality of Life Research VL - 19 UR - https://doi.org/10.1007/s11136-010-9649-x DO - 10.1007/s11136-010-9649-x ID - Ravens-Sieberer2010 ER - TY - STD TI - Ramos-Goñi, J. M., Oppe, M., Stolk, E., Shah, K., Kreimeier, S., Rivero-Arias, O., et al. (2020;(0123456789). Available from). International valuation protocol for the EQ-5D-Y-3L. Pharmacoeconomics. https://doi.org/10.1007/s40273-020-00909-3. ID - ref15 ER - TY - BOOK AU - Lehohla, P. PY - 2012 DA - 2012// TI - Census 2011 - Census in brief. Vols. 03–01–41, Statistics South Africa ID - Lehohla2012 ER - TY - STD TI - South African Department of Basic Education. Department of Basic Education (2010). The status of the Language of Learning and Teaching (LOLT) in South African Public Schools, (p. 44). Pretoria: Department of Basic Education. ID - ref17 ER - TY - JOUR AU - Maccallum, R. C. AU - Widaman, K. F. AU - Preacher, K. J. AU - Hong, S. PY - 2001 DA - 2001// TI - Sample size in factor analysis: the role of model error JO - Multivariate Behavioral Research VL - 36 UR - https://doi.org/10.1207/S15327906MBR3604_06 DO - 10.1207/S15327906MBR3604_06 ID - Maccallum2001 ER - TY - CHAP AU - Macran, S. ED - Brooks, R. ED - Rabin, R. ED - Charro, F. PY - 2003 DA - 2003// TI - Test-retest performance of EQ-5D BT - The measurement and valuation of health Staus using EQ-5D: A European perspective PB - Springer CY - Dordrecth ID - Macran2003 ER - TY - STD TI - Marnell G. (2008). Measuring Readability Part 1: The spirit is willing but Flesch is weak. Southern Communicator, (14), 1–16. ID - ref20 ER - TY - BOOK AU - Squires, J. AU - Twombly, E. AU - Bricker, D. AU - Potter, L. PY - 2009 DA - 2009// TI - ASQ-3 User’s Guide PB - Paul H. Brookes Publishing Co. Inc CY - Baltimore ID - Squires2009 ER - TY - JOUR AU - Squires, J. AU - Bricker, D. AU - Potter, L. PY - 1997 DA - 1997// TI - Revision of a parent-completed development screening tool: Ages and stages questionniare JO - Journal of Pediatric Psychology VL - 22 UR - https://doi.org/10.1093/jpepsy/22.3.313 DO - 10.1093/jpepsy/22.3.313 ID - Squires1997 ER - TY - JOUR AU - Gollenberg, A. L. AU - Lynch, C. D. AU - Jackson, L. W. AU - McGuinness, B. M. AU - Msall, M. E. PY - 2010 DA - 2010// TI - Concurrent validity of the parent-completed Ages and Stages Questionnaires, 2nd Ed. with the Bayley Scales of Infant Development II in a low-risk sample JO - Child: Care, Health and Development VL - 36 ID - Gollenberg2010 ER - TY - JOUR AU - Filgueiras, A. AU - Pires, P. AU - Maissonette, S. AU - Landeira-Fernandez, J. PY - 2013 DA - 2013// TI - Psychometric properties of the Brazilian-adapted version of the Ages and Stages Questionnaire in public child daycare centers JO - Early Human Development VL - 89 UR - https://doi.org/10.1016/j.earlhumdev.2013.02.005 DO - 10.1016/j.earlhumdev.2013.02.005 ID - Filgueiras2013 ER - TY - JOUR AU - Kerstjens, J. M. AU - Bos, A. F. AU - Vergert, E. M. J. AU - Meer, G. AU - Butcher, P. R. AU - Reijneveld, S. A. PY - 2009 DA - 2009// TI - Support for the global feasibility of the ages and stages questionnaire as developmental screener JO - Early Human Development VL - 85 UR - https://doi.org/10.1016/j.earlhumdev.2009.03.001 DO - 10.1016/j.earlhumdev.2009.03.001 ID - Kerstjens2009 ER - TY - JOUR AU - Herr, K. AU - Coyne, P. J. AU - Manworren, R. AU - McCaffery, M. AU - Merkel, S. AU - Pelosi-Kelly, J. PY - 2006 DA - 2006// TI - Pain assessment in the nonverbal patient : position statement with clinical practice recommendations JO - American Society for Pain Management Nursing VL - 7 UR - https://doi.org/10.1016/j.pmn.2006.02.003 DO - 10.1016/j.pmn.2006.02.003 ID - Herr2006 ER - TY - JOUR AU - Manworren, R. AU - Hynan, L. PY - 2003 DA - 2003// TI - Clinical validation of FLACC: Preverbal patient pain scale JO - Pediatric Nursing VL - 29 ID - Manworren2003 ER - TY - JOUR AU - Merkel, S. AU - Voepel-Lewis, T. AU - Malviya, S. PY - 2002 DA - 2002// TI - Pain Assessment in infants and young children: The FLACC scale JO - AJN The American Journal of Nursing VL - 102 UR - https://doi.org/10.1097/00000446-200210000-00024 DO - 10.1097/00000446-200210000-00024 ID - Merkel2002 ER - TY - JOUR AU - Malviya, S. AU - Voepel-Lewis, T. AU - Burke, C. AU - Merkel, S. AU - Tait, A. R. PY - 2006 DA - 2006// TI - The revised FLACC observational pain tool: improved reliability and validity for pain assessment in children with cognitive impairment JO - Paediatric Anaesthesia VL - 16 UR - https://doi.org/10.1111/j.1460-9592.2005.01773.x DO - 10.1111/j.1460-9592.2005.01773.x ID - Malviya2006 ER - TY - JOUR AU - Merkel, S. I. AU - Voepel-Lewis, T. AU - Shayevitz, J. R. AU - Malviya, S. PY - 1997 DA - 1997// TI - The FLACC: a behavioral scale for scoring postoperative pain in young children JO - Pediatric Nursing VL - 23 ID - Merkel1997 ER - TY - JOUR AU - Voepel-Lewis, T. AU - Zanotti, J. AU - Dammeyer, J. A. AU - Merkel, S. PY - 2010 DA - 2010// TI - Reliability and validity of the face, legs, activity, cry, consolability behavioral tool in assessing acute pain in critically ill patients JO - American Journal of Critical Care VL - 19 UR - https://doi.org/10.4037/ajcc2010624 DO - 10.4037/ajcc2010624 ID - Voepel-Lewis2010 ER - TY - JOUR AU - Gallo, A. -. M. PY - 2003 DA - 2003// TI - The fifth vital sign: Implementation of the neonatal Infant pain scale JO - Journal of Obstetric, Gynecologic, and Neonatal Nursing VL - 32 UR - https://doi.org/10.1177/0884217503251745 DO - 10.1177/0884217503251745 ID - Gallo2003 ER - TY - JOUR AU - Hudson-Barr, D. AU - Capper-Michel, B. AU - Lambert, S. AU - Palermo, T. M. AU - Morbeto, K. AU - Lombardo, S. PY - 2002 DA - 2002// TI - Validation of the pain assessment in neonates (PAIN) scale with the Neonatal Infant Pain Scale (NIPS) JO - Neonatal Network VL - 21 UR - https://doi.org/10.1891/0730-0832.21.6.15 DO - 10.1891/0730-0832.21.6.15 ID - Hudson-Barr2002 ER - TY - JOUR AU - Duhn, L. J. AU - Medves, J. M. PY - 2004 DA - 2004// TI - A systematic integrative review of infant pain assessment tools JO - Advances in Neonatal Care VL - 4 UR - https://doi.org/10.1016/j.adnc.2004.04.005 DO - 10.1016/j.adnc.2004.04.005 ID - Duhn2004 ER - TY - JOUR AU - Colditz, G. A. AU - Rockett, H. R. PY - 1997 DA - 1997// TI - Assessing diets of children and adolescents JO - The American Journal of Clinical Nutrition VL - 65 ID - Colditz1997 ER - TY - CHAP AU - Frances, E. AU - Thompson, A. F. S. PY - 2008 DA - 2008// TI - Dietary assessment methodology BT - Nutrition in the Prevention and Treatment of Disease ID - Frances2008 ER - TY - STD TI - Thompson, F. E., & Byers, T. (1994). Dietary Assessment Methodology. Am Inst Nutr J Nutr, 124, 2245S–2317S. ID - ref37 ER - TY - STD TI - Gliem, J. A., & Gliem, R. R. (2003). Calculating, interpreting, and reporting Cronbach’s alpha reliability coefficient for Likert-type scales. In: Midwest Research-to-Practice Conference in Adult, Continuing, and Community Education, p. 82–88. ID - ref38 ER - TY - JOUR AU - Koo, T. K. AU - Li, M. Y. PY - 2016 DA - 2016// TI - A guideline of selecting and reporting Intraclass correlation coefficients for reliability research JO - Journal of Chiropractic Medicine VL - 15 UR - https://doi.org/10.1016/j.jcm.2016.02.012 DO - 10.1016/j.jcm.2016.02.012 ID - Koo2016 ER - TY - STD TI - Scott, D., Ferguson, G. D., & Jelsma, J. (2017). The use of the EQ-5D-Y health related quality of life outcome measure in children in the Western Cape , South Africa : psychometric properties , feasibility and usefulness - a longitudinal , analytical study. Health and Quality of Life Outcomes, 1–14. Available from. https://doi.org/10.1186/s12955-017-0590-3. ID - ref40 ER - TY - JOUR AU - Burström, K. AU - Bartonek, A. AU - Broström, E. W. AU - Sun, S. AU - Egmar, A. C. PY - 2014 DA - 2014// TI - EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility and validity JO - Acta Paediatrica VL - 103 UR - https://doi.org/10.1111/apa.12557 DO - 10.1111/apa.12557 ID - Burström2014 ER - TY - JOUR AU - Varni, J. W. AU - Limbers, C. A. AU - Neighbors, K. AU - Schulz, K. AU - JEC, L. AU - Heffer, R. W. PY - 2011 DA - 2011// TI - The PedsQL™ Infant Scales: feasibility, internal consistency reliability, and validity in healthy and ill infants JO - Quality of Life Research VL - 20 UR - https://doi.org/10.1007/s11136-010-9730-5 DO - 10.1007/s11136-010-9730-5 ID - Varni2011 ER - TY - JOUR AU - Akoglu, H. PY - 2018 DA - 2018// TI - User’s guide to correlation coefficients JO - Turkish Journal of Emergency Medicine VL - 18 UR - https://doi.org/10.1016/j.tjem.2018.08.001 DO - 10.1016/j.tjem.2018.08.001 ID - Akoglu2018 ER - TY - JOUR AU - McDougall, J. AU - Wright, V. AU - Rosenbaum, P. PY - 2010 DA - 2010// TI - The ICF model of functioning and disability: Incorporating quality of life and human development JO - Developmental Neurorehabilitation VL - 13 UR - https://doi.org/10.3109/17518421003620525 DO - 10.3109/17518421003620525 ID - McDougall2010 ER - TY - JOUR AU - Mokkink, L. B. AU - Prinsen, C. A. C. AU - Bouter, L. M. AU - Vet, H. C. W. AU - Terwee, C. B. PY - 2016 DA - 2016// TI - The COnsensus-based standards for the selection of health measurement INstruments (COSMIN) and how to select an outcome measurement instrument JO - Brazilian Journal of Physical Therapy VL - 20 UR - https://doi.org/10.1590/bjpt-rbf.2014.0143 DO - 10.1590/bjpt-rbf.2014.0143 ID - Mokkink2016 ER - TY - JOUR AU - Myatt, H. M. AU - Myatt, R. A. PY - 1998 DA - 1998// TI - The development of a paediatric quality of life questionnaire to measure post-operative pain following tonsillectomy JO - International Journal of Pediatric Otorhinolaryngology VL - 44 UR - https://doi.org/10.1016/S0165-5876(98)00053-6 DO - 10.1016/S0165-5876(98)00053-6 ID - Myatt1998 ER - TY - JOUR AU - Pillai Ridell, R. AU - Fitzgerald, M. AU - Slater, R. AU - Stevens, B. AU - Johnston, C. AU - Campbell-Yo, M. PY - 2016 DA - 2016// TI - Using only behaviours to assess infant pain : a painful compromise ? JO - Pain. VL - 157 UR - https://doi.org/10.1097/j.pain.0000000000000598 DO - 10.1097/j.pain.0000000000000598 ID - Pillai Ridell2016 ER - TY - JOUR AU - Canaway, A. G. AU - Frew, E. J. PY - 2013 DA - 2013// TI - Measuring preference-based quality of life in children aged 6–7 years : a comparison of the performance of the CHU-9D and EQ-5D-Y — the WAVES Pilot Study JO - Quality of Life Research VL - 22 UR - https://doi.org/10.1007/s11136-012-0119-5 DO - 10.1007/s11136-012-0119-5 ID - Canaway2013 ER - TY - JOUR AU - Wille, N. AU - Badia, X. AU - Bonsel, G. AU - Burstrom, K. AU - Cavrini, G. AU - Devlin, N. PY - 2010 DA - 2010// TI - Development of the EQ-5D-Y : a child-friendly version of the EQ-5D JO - Quality of Life Research VL - 19 UR - https://doi.org/10.1007/s11136-010-9648-y DO - 10.1007/s11136-010-9648-y ID - Wille2010 ER - TY - JOUR AU - Eidt-Koch, D. AU - Mittendorf, T. AU - Greiner, W. PY - 2009 DA - 2009// TI - Cross-sectional validity of the EQ-5D-Y as a generic health outcome instrument in children and adolescents with cystic fibrosis in Germany JO - BMC Pediatrics VL - 8 UR - https://doi.org/10.1186/1471-2431-9-55 DO - 10.1186/1471-2431-9-55 ID - Eidt-Koch2009 ER - TY - JOUR AU - Bergfors, S. AU - Åström, M. AU - Burström, K. AU - Egmar, A. -. C. PY - 2015 DA - 2015// TI - Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma JO - Acta Paediatrica VL - 104 UR - https://doi.org/10.1111/apa.12863 DO - 10.1111/apa.12863 ID - Bergfors2015 ER - TY - JOUR AU - Scalone, L. AU - Tomasetto, C. AU - Matteucci, M. C. AU - Selleri, P. AU - Broccoli, S. AU - Pacelli, B. PY - 2011 DA - 2011// TI - Assessing quality of life in children and adolescents : Development and validation of the Italian version of the EQ-5D-Y JO - Italian Journal of Public Health VL - 8 ID - Scalone2011 ER - TY - JOUR AU - Benjasuwantep, B. AU - Chaithirayanon, S. AU - Eiamudomkan, M. PY - 2013 DA - 2013// TI - Feeding problems in healthy young children: Prevalence, related factors and feeding practices JO - Pediatric Reports VL - 5 UR - https://doi.org/10.4081/pr.2013.e10 DO - 10.4081/pr.2013.e10 ID - Benjasuwantep2013 ER - TY - JOUR AU - Singendonk, M. AU - Goudswaard, E. AU - Langendam, M. AU - Wijk, M. AU - Etten-Jamaludin, F. AU - Benninga, M. PY - 2019 DA - 2019// TI - Prevalence of Gastroesophageal reflux disease symptoms in infants and children: a systematic review JO - Journal of Pediatric Gastroenterology and Nutrition VL - 68 UR - https://doi.org/10.1097/MPG.0000000000002280 DO - 10.1097/MPG.0000000000002280 ID - Singendonk2019 ER - TY - JOUR AU - Saigal, S. AU - Rosenbaum, P. AU - Stoskopf, B. AU - Hoult, L. AU - Furlong, W. AU - Feeny, D. PY - 2005 DA - 2005// TI - Development, reliability and validity of a new measure of overall health for pre-school children JO - Quality of Life Research VL - 14 UR - https://doi.org/10.1007/s11136-004-4228-7 DO - 10.1007/s11136-004-4228-7 ID - Saigal2005 ER - TY - JOUR AU - Holloway, J. M. AU - Long, T. M. PY - 2019 DA - 2019// TI - The interdependence of motor and social skill development: influence on participation JO - Physical Therapy VL - 99 UR - https://doi.org/10.1093/ptj/pzz025 DO - 10.1093/ptj/pzz025 ID - Holloway2019 ER - TY - JOUR AU - Diamond, A. PY - 2007 DA - 2007// TI - Interrelated and interdependent JO - Developmental Science VL - 10 UR - https://doi.org/10.1111/j.1467-7687.2007.00578.x DO - 10.1111/j.1467-7687.2007.00578.x ID - Diamond2007 ER - TY - JOUR AU - Mazure, A. AU - Szcsepanski, T. PY - 2013 DA - 2013// TI - Pain management in children JO - Annals of Agricultural and Environmental Medicine VL - 1 ID - Mazure2013 ER - TY - JOUR AU - Liu, Y. H. AU - Stein, M. PY - 2013 DA - 2013// TI - Feeding behaviour of infants and young children and its impact on child psychosocial and emotional development JO - Encyclopedia Early Childhood Development VL - 2 ID - Liu2013 ER - TY - JOUR AU - Porter, N. AU - Ispa, J. M. PY - 2013 DA - 2013// TI - Mothers’ online message board questions about parenting infants and toddlers JO - Journal of Advanced Nursing VL - 69 UR - https://doi.org/10.1111/j.1365-2648.2012.06030.x DO - 10.1111/j.1365-2648.2012.06030.x ID - Porter2013 ER - TY - JOUR AU - Horst, K. AU - Sleddens, E. F. C. PY - 2017 DA - 2017// TI - Parenting styles, feeding styles and foodrelated parenting practices in relation to toddlers’ eating styles: A cluster-analytic approach JO - PLoS One VL - 12 ID - Horst2017 ER - TY - JOUR AU - Albers, C. A. AU - Grieve, A. J. PY - 2007 DA - 2007// TI - Bayley Scales of Infant and toddler development, Third Edition JO - Journal of Psychoeducational Assessment VL - 25 UR - https://doi.org/10.1177/0734282906297199 DO - 10.1177/0734282906297199 ID - Albers2007 ER - TY - JOUR AU - Kim, E. Y. AU - Sung, I. K. PY - 2007 DA - 2007// TI - The ages and stages questionnaire: Screening for developmental delay in the setting of a pediatric outpatient clinic JO - Korean Journal of Pediatrics VL - 50 UR - https://doi.org/10.3345/kjp.2007.50.11.1061 DO - 10.3345/kjp.2007.50.11.1061 ID - Kim2007 ER - TY - JOUR AU - Knox, V. PY - 2008 DA - 2008// TI - Do parents of children with cerebral palsy express different concerns in relation to their child’s type of cerebral palsy, age and level of disability? JO - Physiotherapy. VL - 94 UR - https://doi.org/10.1016/j.physio.2007.04.005 DO - 10.1016/j.physio.2007.04.005 ID - Knox2008 ER -