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Table 4 PROMIS Questionnaire Versus Patient Advisory Board Responses

From: Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity

Scale Summary of PAB Response
Upper Extremity SF 7a 7 of 7 questions rated addressing an unmet need
Fatigue SF 8a 8 of 8 questions rated addressing an unmet need
Physical Function SF 20a 19 of 20 questions rated addressing an unmet need
Dyspnea SF 10a 9 of 10 questions rated addressing an unmet need
  1. PAB Patient Advisory Board, PROMIS Patient-Reported Outcomes Measurement Information System, SF Short Form