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Journal of Patient-Reported Outcomes

Table 4 PROMIS Questionnaire Versus Patient Advisory Board Responses

From: Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity

Scale

Summary of PAB Response

Upper Extremity SF 7a

7 of 7 questions rated addressing an unmet need

Fatigue SF 8a

8 of 8 questions rated addressing an unmet need

Physical Function SF 20a

19 of 20 questions rated addressing an unmet need

Dyspnea SF 10a

9 of 10 questions rated addressing an unmet need

  1. PAB Patient Advisory Board, PROMIS Patient-Reported Outcomes Measurement Information System, SF Short Form
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