Skip to main content

Table 3 Average Raw Scores for PROMIS Questionnaires

From: Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity

  Number of Patients Mean Standard Deviation Median Minimum Maximum
Pain Interference 29 16.72 9.180 16.00 8 35
Fatigue 29 23.48 8.671 22.00 8 40
Upper Extremity 30 25.10 7.174 25.00 13 35
Physical Function 30 71.47 13.761 70.50 44 100
Dyspnea 30 24.96 19.099 22.80 0 67.6
  1. PROMIS Patient-Reported Outcomes Measurement Information System