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Table 3 Average Raw Scores for PROMIS Questionnaires

From: Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity

 

Number of Patients

Mean

Standard Deviation

Median

Minimum

Maximum

Pain Interference

29

16.72

9.180

16.00

8

35

Fatigue

29

23.48

8.671

22.00

8

40

Upper Extremity

30

25.10

7.174

25.00

13

35

Physical Function

30

71.47

13.761

70.50

44

100

Dyspnea

30

24.96

19.099

22.80

0

67.6

  1. PROMIS Patient-Reported Outcomes Measurement Information System