Skip to main content

Table 1 PROMIS Questionnaires Administered

From: Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity

PROMIS Questionnaire Number of Questions Minimum Score for Each Item Maximum Score for Each Item Meaning
Pain Interference Short Form 8a 8 1
“not at all”
5
“very much”
The lower the score, the less pain was an interference in ADL and HRQoL
Upper Extremity Short Form 7a 7 1
“unable to do”
5
“without any difficulty”
The higher the score, the more mobility with upper extremities
Fatigue Short Form 8a 8 1
“not at all”
5
“very much”
The lower the score, the less impact fatigue had on ADL and HRQoL
Physical Function Short Form 20a 20 1
“unable to do”
5
“without any difficulty”
The higher the score, the less impact on physical function
Dyspnea Short Form 10a 10 0
“no shortness of breath”
3
“severely short of breath”
The lower the score, the less limitation by breathlessness
  1. ADL Activities of daily living, HRQoL Health-related quality of life, PROMIS Patient-Reported Outcomes Measurement Information System