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Table 2 Characteristics of the included COS studies

From: Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review

Author Scope of core outcome set Development methods Stakeholder expertise Nature of PRO recommendations
Setting for COS use Population Intervention Outcome identification Consensus Patient Clinical Other
Avery [20] Clinical effectiveness trials in esophageal cancer resection surgery Adults with oesophageal cancer Surgery Patient interviews Delphi questionnaire Yes Nurse Outcomes only
National audit of outcomes Consensus meeting Surgeon
Systematic review
Chen [21] Prostate cancer treatment trials Men with prostate cancer Not specified Systematic review Consensus meeting Yes Physician Researcher Suggests relevant measures
Chera [22] Head & neck cancer treatment trials Adults with head & neck cancer Not specified Literature review Consensus meeting Yes Medical oncologist HRQOL expert Specific measures recommended
Survey Radiation oncologist Psychologist
Surgeon
Donovan [23] Ovarian cancer treatment trials Women with ovarian cancer Not specified Literature review Consensus meeting Yes Gynecologic oncologist Suggests relevant measures
Medical oncologist
Nurse
Geerse [24] Not specified Adult cancer survivors Not specified Based on the ICF Delphi questionnaire Yes Nurse practitioner Dietician Specific measures recommended
Oncology nurse Social worker
Physician Physical therapist
Psychologist
Gerrtisen [25] Nationwide prospective pancreatic cancer registry Adults with pancreatic or periampullary cancer Treated with curative intent or in palliative setting Extracted PROMs from a systematic review and RCTs from the PROMOTION Registry Delphi questionnaire Yes Gastroenterologist Dietician Outcomes only
Medical oncologist
Nurse
Radiotherapist
Surgeon
Howell [26] Outcome measurement in routine cancer care Adults with cancer Not specified Literature review Delphi questionnaire Yes Oncologist Administrator Suggests relevant measures
Consensus meeting Physician Dietician
Radiation oncologist Psychologist
Social worker
Researcher
Maclennan [27] Localised prostate cancer effectiveness trials Men with prostate cancer aged 45–75 Surgery Systematic review Delphi questionnaire Yes Cancer nurse specialist Outcomes only
Patient interviews Consensus meeting Oncologist
Surgeon
Mak [28] Routine clinical practice Adults with newly diagnosed lung cancer Any Literature review Delphi questionnaire Yes Medical oncologist Registry expert Specific measures recommended
Teleconferences Radiation oncologist Researchers
Palliative care specialist
Pulmonologist
Specialist nurse
Surgeon
Martin [29] Routine clinical practice Men with localised prostate cancer Active monitoring, radiotherapy, surgery Not specified Delphi questionnaire Yes Radiation oncologist Registry expert Specific measures recommended
Teleconferences Urologist Researchers
McNair [30] Clinical effectiveness trials in colorectal cancer surgery Adults with colon or rectal cancer Surgery Systematic review Delphi questionnaire Yes Clinical nurse specialist Caregiver Outcomes only
Patient interviews Consensus meeting Surgeon
Analysis of patient information leaflets
Morgans [31] Routine clinical practice Men with advanced prostate cancer Any Literature review Delphi questionnaire Yes Medical oncologist Epidemiologist Specific measures recommended
Teleconferences Radiation oncologist
Oncology nurse
Palliative care specialist
Urologist
Ong [9] Routine clinical practice Women with breast cancer Not specified Literature review Delphi questionnaire Yes Nurse Epidemiologist Specific measures recommended
Review of breast cancer registries Videoconferences Medical oncologist
Focus groups with patients Radiation oncologist
Pathologist
Radiologist
Palliative care specialist
Surgeon
Potter [32] Research and audit studies in reconstructive breast surgery Women with breast cancer Surgery Systematic review Delphi questionnaire Yes Clinical nurse specialist Industry representative Outcomes only
Interviews with patients and healthcare professionals Consensus meeting Surgeon
Psychologist
Reeve [33] Adult cancer treatment trials Adults with cancer Not specified Systematic review Teleconferences Yes Clinicians (not specified) Industry representative Outcomes only
Analysis of primary data sources Consensus meeting Clinical trials cooperative group administration
Methodological expert
Researcher
Statistician
Tschiesner [34] Clinical studies & encounters Adults with head & neck cancer Not specified Systematic review Consensus conference Yes Nurse Physiotherapist Outcomes only
Patient interviews Otolaryngologist Psychologist
Survey of health professionals Nominal group technique Medical oncologist Social worker
Multi-centre study Radiation oncologist
Surgeon
Zerillo [29] Value-based healthcare efforts in colorectal cancer care Adults with colon or rectal cancer Not specified Literature review Delphi questionnaire Yes Oncology nurse Epidemiologist Specific measures recommended
Review of colorectal cancer registries Videoconferences Medical oncologist
Focus groups with patients
Radiation oncologist
Palliative care specialist
Surgeon