| Age range | Gender | Context/Reason of Discussion | Example Patients’ Quotes | |||
---|---|---|---|---|---|---|---|
Female | Male | Disease symptom | Side effect of treatment | Unknown reason | |||
Neuropathy (n = 19) | 53–64 | 67% | 33% | 0% | 74% | 26% | “Neuropathy was soooo bad some days I just could not get out of bed” “I have severe neuropathy from treatment” |
Tiredness (n = 17) | 47–71 | 63% | 37% | 6% | 65% | 29% | “I am 2 weeks out of stem cell transplant. I still feel weak and tired all the time” “I don’t tolerate it well. Makes me feel very tired” |
Nausea (n = 16) | 33–69 | 69% | 31% | 6% | 56% | 38% | “Besides tiredness and nausea, I’m fine” “I only has a little bit of vomiting and nausea after the procedure” |
Back pain (n = 15) | 53–61 | 88% | 12% | 40% | 53% | 7% | “Back pain and feeling lethargic are the only symptoms so far” “She had pain in back for 2 years before I insisted on X-ray to find a tumor had encompassed her T5 vertebra and crushed it” |
Fatigue (n = 12) | 38–71 | 43% | 57% | 8% | 75% | 17% | “The fatigue for him lasted longer but he was back to work in 3.5 months for half days” “My side effects are almost continuous dizziness, shakiness, extreme dry eyes, fatigue” |
Bone pain (n = 12) | 33–75 | 67% | 33% | 33% | 25% | 42% | “I am having bad bone pain all over” “Not so great because of bone pain” |