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Table 1 Most Commonly Reported Symptoms

From: Using a digital patient powered research network to identify outcomes of importance to patients with multiple myeloma

  Age range Gender Context/Reason of Discussion Example Patients’ Quotes
Female Male Disease symptom Side effect of treatment Unknown reason
Neuropathy (n = 19) 53–64 67% 33% 0% 74% 26% “Neuropathy was soooo bad some days I just could not get out of bed”
“I have severe neuropathy from treatment”
Tiredness (n = 17) 47–71 63% 37% 6% 65% 29% “I am 2 weeks out of stem cell transplant. I still feel weak and tired all the time”
“I don’t tolerate it well. Makes me feel very tired”
Nausea (n = 16) 33–69 69% 31% 6% 56% 38% “Besides tiredness and nausea, I’m fine”
“I only has a little bit of vomiting and nausea after the procedure”
Back pain (n = 15) 53–61 88% 12% 40% 53% 7% “Back pain and feeling lethargic are the only symptoms so far”
“She had pain in back for 2 years before I insisted on X-ray to find a tumor had encompassed her T5 vertebra and crushed it”
Fatigue (n = 12) 38–71 43% 57% 8% 75% 17% “The fatigue for him lasted longer but he was back to work in 3.5 months for half days”
“My side effects are almost continuous dizziness, shakiness, extreme dry eyes, fatigue”
Bone pain (n = 12) 33–75 67% 33% 33% 25% 42% “I am having bad bone pain all over”
“Not so great because of bone pain”
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