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Table 4 Number of patients discussing their experience with each psychosocial concept included in the conceptual model

From: “‘You lose your hair, what’s the big deal?’ I was so embarrassed, I was so self-conscious, I was so depressed:” a qualitative interview study to understand the psychosocial burden of alopecia areata

Concept Patients discussing experience of concept, n (%)
(N = 45)
Perceived/ Actual stigmatization
 Social Judgement 20 (44)
 Association with cancer 12 (27)
Relationship impacts
 Impact on romantic relationships 8 (18)
 Impact on familial relationships 10 (22)
 Impact on friendships 16 (36)
Emotional impacts
 Sadness/ Depression 21 (47)
 Anxiety/ Worry/ Fear/ Stress 19 (42)
 Guilt 3 (7)
 Anger/ Frustration 3 (7)
 Embarrassment/ Shame 10 (22)
Psychological impacts
 Insecurity/ Inadequacy/ Self-consciousness 25 (56)
 Helplessness 5 (11)
 Low self-confidence/ Introversion 9 (20)
Social and lifestyle impacts
 Impact on exercise/ leisure activities 22 (49)
 Financial strain 4 (9)
 Longer hygiene/ beauty regime 15 (33)
 Social avoidance 18 (40)
 Impact on work/ school 18 (40)