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Table 4 Use of EQ-5D data for benchmarking

From: Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care - the case of the Swedish National Quality Registries

Registry

Description of benchmarking

The registry for Better management of patients with OsteoArthritis (BOA)

Quality indicators based on EQ-5D index data from BOA, presented in “Health care in numbers” (Table 3), are not only presented on a national level, but also per region.

The Swedish Hip Arthroplasty Register (SHPR)

The quality indicator based on EQ VAS data from SHPR presented in “Health care in numbers” (Table 3) are presented per reporting unit, and on a regional and national level. Observed outcomes are compared with expected outcomes (based on age, sex, diagnosis, Charnley class and pre-operative PROM results).

Swedish Spine Register (Swespine)

Individual clinics connected to the registry may create reports with their own EQ-5D results compared to those of other clinics and the national average. Absolute and case-mix adjusted EQ-5D index values 1 year after surgery are also presented per unit for those units that are connected to the SVEUS platform [45].

The Swedish Neuro Registries – Multiple Sclerosis

The EQ-5D index is presented per region on the registry’s Visualisation and Analysis Platform (VAP), which can be accessed by health care providers [29]. In the quarterly reports to the units, the results of the quality indicator for each unit are also presented in comparison with the results of other units.

The Swedish Quality Registry for Pain Rehabilitation (SQRP)

The average EQ-5D index and EQ VAS scores, before and after pain rehabilitation, are presented for all contributing units in the annual report [51]. The number of patients with improvements, no change, or deteriorations in the EQ-5D index and EQ VAS are also presented per unit. A change in the EQ-5D index is defined as a difference of more than 0.1 before and after rehabilitation. For EQ VAS, a change is defined as at least a 20% difference between the measurements.

National Quality Registry for Systemic Psoriasis Treatment (PsoReg)

The average EQ-5D index is presented per clinic in the annual report [52].

The National Quality Registry for Podiatric Surgery (RiksFot)

The average EQ-5D index before, and 1 year after, surgery are for all contributing units publicly available on the registry webpage [40].

  1. Note: PROM Patient-reported outcome measure, VAS visual analogue scale