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Table 2 Distribution of responses and parameters of test-retest reliability and adolescent-parent agreement

From: First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years

Domain1 and item content   Missing (%) Distribution of responses over response categories2 (%) Test-retest reliability parameters Adolescent-parent agreement
  1 2 3 4 Agreement (%) Weighted kappa Agreement (%) Weighted kappa
LT1: Doing sports Adolescent 13.0 62.7 37.3 0.0 0.0 74.6 0.53 66.1 0.38
Parent 7.8 38.0 52.1 9.9 0.0 64.1 0.62   
LT2: Keeping up with others during play/sports Adolescent 3.9 68.9 27.0 4.1 0.0 66.7 0.47 42.0 0.19
Parent 7.8 28.2 47.9 16.9 7.0 64.1 0.72   
LT3: Using social media Adolescent 3.9 90.5 8.1 1.4 0.0 85.7 0.09 79.4 0.34
Parent 7.8 76.1 21.1 2.8 0.0 87.1 0.61   
LT4: Playing games on computer, tablet, phone Adolescent 15.6 83.1 16.9 0.0 0.0 80.6 0.22 74.2 0.23
Parent 7.8 70.4 26.8 2.8 0.0 81.3 0.70   
LT5: Watching films/television Adolescent 1.3 64.5 32.9 2.6 0.0 77.5 0.57 57.7 0.17
Parent 6.5 48.6 44.4 6.9 0.0 75.4 0.65   
LT6: Going to a club independentlyb,c Adolescent 46.8 90.2 4.9 0.0 4.9 83.9 0.69 68.3 0.57
Parent 13.0 44.8 19.4 17.9 17.9 66.7 0.87   
LT7: Participating at a club Adolescent 27.3 91.1 8.9 0.0 0.0 91.5 −0.03 54.0 0.13
Parent 14.3 51.5 28.8 19.7 0.0 65.5 0.70   
LT8: Making music Adolescent 51.9 70.3 27.0 2.7 0.0 75.0 0.49 61.8 0.36
Parent 29.9 59.3 33.3 5.6 1.9 85.0 0.84   
LT9: Performing a hobby Adolescent 33.8 76.5 21.6 2.0 0.0 79.5 0.43 64.5 0.18
Parent 46.8 61.0 31.7 7.3 0.0 85.7 0.83   
MO1: Cyclingd,e Adolescent 9.1 54.0 27.1 7.1 11.4 75.8 0.78 69.2 0.74
Parent 7.8 46.5 26.8 9.9 16.9 81.3 0.90   
MO2: Cycling to something independentlyb,d,f Adolescent 13.0 70.1 13.4 3.0 13.4 79.0 0.90 75.4 0.70
Parent 9.1 51.4 15.7 7.1 25.7 79.0 0.90   
MO3: Going to a friend in the neighborhoodc,e,f Adolescent 13.0 80.6 11.9 3.0 4.5 90.3 0.87 71.0 0.57
Parent 7.8 54.9 21.1 15.5 8.5 74.6 0.83   
MO4: Participating in traffic independently Adolescent 6.5 63.9 26.4 5.6 4.2 75.0 0.64 44.8 0.40
Parent 6.5 34.7 38.9 13.9 12.5 72.3 0.85   
MO5: Estimating speeds Adolescent 2.6 37.3 40.0 21.3 1.3 69.0 0.70 47.1 0.30
Parent 7.8 15.5 45.1 29.6 9.9 75.0 0.70   
MO6: Using public transport independently Adolescent 31.2 69.8 15.1 11.3 3.8 81.6 0.61 50.0 0.53
Parent 19.5 33.9 37.1 17.7 11.3 63.3 0.82   
MO7: Learning new routes Adolescent 3.9 68.9 24.3 5.4 1.4 68.1 0.34 47.1 0.12
Parent 7.8 46.5 32.4 19.7 1.4 78.1 0.83   
SC1: Making contact with others Adolescent 0.0 83.1 13.0 2.6 1.3 86.3 0.46 66.7 0.35
Parent 6.5 61.1 30.6 8.3 0.0 72.3 0.64   
SC2: Doing activities with peers without VIg Adolescent 3.9 71.6 21.6 6.8 0.0 80.9 0.70 64.7 0.37
Parent 7.8 54.9 29.6 15.5 0.0 74.2 0.68   
SC3: Participating in group activities Adolescent 0.0 67.5 22.1 9.1 1.3 80.3 0.55 44.9 0.16
Parent 10.4 34.8 39.1 23.2 2.9 64.4 0.71   
SC4: Shopping with friendsa Adolescent 44.2 93.0 2.3 2.3 2.3 87.9 −0.05 73.0 0.46
Parent 18.2 58.7 22.2 14.3 4.8 76.4 0.85   
SC5: Going a night out with friends Adolescent 50.6 60.5 28.9 5.3 5.3 86.2 0.76 66.7 0.52
Parent 28.6 36.4 34.5 18.2 10.9 69.0 0.84   
SC6: Datingg Adolescent 74.0 90.0 5.0 0.0 5.0 100.0 n/a 78.6 0.00
Parent 51.9 51.4 27.0 21.6 0.0 74.1 0.80   
SC7: Dealing with amorousness Adolescent 58.4 96.9 3.1 0.0 0.0 100.0 n/a 83.3 0.00
Parent 44.2 69.8 18.6 11.6 0.0 83.3 0.58   
CO1: Being able to express in words properly Adolescent 0.0 80.5 16.9 2.6 0.0 87.7 0.69 84.7 0.61
Parent 6.5 83.3 15.3 1.4 0.0 80.0 0.51   
CO2: Asking questions Adolescent 2.6 80.0 16.0 4.0 0.0 77.8 0.37 70.4 0.34
Parent 6.5 65.3 30.6 4.2 0.0 73.8 0.57   
CO3: Talking about feelings Adolescent 14.3 60.6 28.8 10.6 0.0 67.7 0.45 47.6 0.25
Parent 6.5 44.4 38.9 16.7 0.0 64.6 0.64   
CO4: Participating in a conversation actively Adolescent 1.3 90.8 7.9 1.3 0.0 90.3 0.54 76.1 0.14
Parent 6.5 79.2 18.1 2.8 0.0 84.6 0.62   
CO5: Asking help from familiar people Adolescent 2.6 82.7 17.3 0.0 0.0 85.9 0.47 64.8 0.15
Parent 6.5 68.1 25.0 6.9 0.0 70.8 0.37   
CO6: Asking help from unfamiliar people Adolescent 7.8 52.1 35.2 11.3 1.4 73.1 0.46 47.8 0.25
Parent 7.8 39.4 38.0 21.1 1.4 72.6 0.68   
CO7: Estimating emotions of others Adolescent 1.3 56.6 34.2 7.9 1.3 74.0 0.70 63.8 0.37
Parent 6.5 47.2 37.5 12.5 2.8 64.6 0.66   
CO8: Estimating the distance to others Adolescent 2.6 73.3 18.7 6.7 1.3 70.0 0.58 52.9 0.09
Parent 9.1 52.9 40.0 7.1 0.0 66.7 0.55   
CO9: Stating that you want to join in a group Adolescent 5.2 78.1 19.2 2.7 0.0 91.0 0.73 55.9 0.36
Parent 9.1 48.6 41.4 10.0 0.0 63.5 0.56   
CO10: Giving your opinion Adolescent 1.3 85.5 9.2 5.3 0.0 87.5 0.60 73.2 0.09
Parent 6.5 77.8 19.4 2.8 0.0 76.9 0.45   
CO11: Dealing with bullying Adolescent 51.9 48.6 27.0 21.6 2.7 52.4 0.60 48.3 0.41
Parent 28.6 34.5 43.6 21.8 0.0 59.1 0.62   
SL1: Finding the way in school Adolescent 0.0 90.9 5.2 2.6 1.3 94.4 0.65 76.4 0.20
Parent 6.5 80.6 18.1 1.4 0.0 85.9 0.57   
SL2: Keeping overview in class Adolescent 1.3 81.6 14.5 2.6 1.3 87.1 0.66 50.7 0.25
Parent 6.5 48.6 45.8 5.6 0.0 78.5 0.68   
SL3: Keeping up with classmates Adolescent 1.3 73.7 21.1 5.3 0.0 86.1 0.66 62.8 0.26
Parent 7.8 49.3 35.2 15.5 0.0 65.1 0.64   
SL4: Cooperating with others Adolescent 1.3 77.6 15.8 6.6 0.0 88.4 0.83 67.6 0.37
Parent 6.5 63.9 30.6 5.6 0.0 75.0 0.68   
SL5: Reading the slide board or schoolboard Adolescent 6.5 50.0 26.4 15.3 8.3 65.7 0.67 41.5 0.32
Parent 10.4 18.8 52.2 15.9 13.0 59.6 0.65   
SL6: Making homework independently Adolescent 7.8 77.5 18.3 4.2 0.0 89.2 0.79 68.2 0.34
Parent 6.5 63.9 30.6 2.8 2.8 76.6 0.71   
SL7: Finding information Adolescent 2.6 74.7 20 4.0 1.3 82.1 0.44 65.2 0.14
Parent 7.8 63.4 35.2 1.4 0.0 66.7 0.44   
SL8: Maintaining energy levels for fun activities Adolescent 1.3 48.7 38.2 11.8 1.3 74.6 0.65 63.4 0.57
Parent 6.5 37.5 38.9 23.6 0.0 70.8 0.75   
SL9: Choosing appropriate further education Adolescent 54.5 71.4 11.4 14.3 2.9 73.1 0.83 54.8 0.35
Parent 27.3 39.3 25.0 33.9 1.8 65.9 0.73   
SR1: Cooking independently Adolescent 32.5 78.8 13.5 5.8 1.9 79.1 0.47 55.6 0.23
Parent 24.7 48.3 29.3 19.0 3.4 87.5 0.92   
SR2: Doing the dishes Adolescent 16.9 90.6 7.8 1.6 0.0 93.1 0.58 67.2 0.23
Parent 7.8 64.8 29.6 5.6 0.0 83.1 0.75   
SR3: Operating devices at home Adolescent 1.3 89.5 10.5 0.0 0.0 90.3 0.19 75.7 0.10
Parent 7.8 73.2 21.1 5.6 0.0 79.7 0.67   
SR4: Shopping for groceries Adolescent 15.6 76.9 10.8 7.7 4.6 79.7 0.63 69.8 0.62
Parent 7.8 59.2 26.8 4.2 9.9 81.0 0.89   
SR5: Picking clothes independently Adolescent 15.6 84.6 10.8 3.1 1.5 89.5 0.49 70.7 0.38
Parent 9.1 60.0 30.0 8.6 1.4 77.4 0.78   
SR6: Brushing your teeth independently Adolescent 1.3 96.1 2.6 1.3 0.0 94.4 0.44 88.5 0.09
Parent 9.1 88.6 8.6 2.9 0.0 90.5 0.74   
SR7: Going to the toileth Adolescent 0.0 100.0 0.0 0.0 0.0 100.0 n/a 94.4 0.00
Parent 6.5 94.4 4.2 1.4 0.0 93.8 0.58   
SR8: Bathing/showering independentlyh Adolescent 0.0 97.4 2.6 0.0 0.0 100.0 1.00 95.8 0.38
Parent 6.5 93.1 5.6 1.4 0.0 93.8 0.65   
SR9: Doing your hair Adolescent 14.3 83.3 15.2 1.5 0.0 89.8 0.45 79.0 0.38
Parent 7.8 77.5 19.7 2.8 0.0 81.0 0.61   
SR10: Dealing with the menstruation (girl) Adolescent 11.1 91.7 4.2 4.2 0.0 95.8 0.88 83.3 0.67
Parent 11.1 75.0 20.8 4.2 0.0 88.9 0.74   
AC1: Telling about your VI Adolescent 2.6 68.0 24.0 6.7 1.3 77.5 0.64 62.8 0.31
Parent 6.5 56.9 27.8 15.3 0.0 70.8 0.63   
AC2: Empathizing with others Adolescent 1.3 80.3 15.8 2.6 1.3 80.6 0.44 57.7 0.20
Parent 6.5 58.3 30.6 9.7 1.4 60.0 0.59   
AC3: Dealing with incapability Adolescent 3.9 44.6 36.5 17.6 1.4 51.4 0.49 40.6 0.14
Parent 6.5 30.6 55.6 13.9 0.0 61.5 0.43   
AC4: Dealing with making mistakes Adolescent 3.9 56.8 24.3 17.6 1.4 78.9 0.78 55.7 0.38
Parent 6.5 37.5 41.7 20.8 0.0 70.8 0.70   
FI1: Paying independentlya Adolescent 5.2 90.4 8.2 1.4 0.0 98.5 0.93 73.8 0.32
Parent 13.0 70.1 19.4 7.5 3.0 81.7 0.85   
  1. VI visual impairment
  2. 1 LT: leisure time; MO: mobility; SC: social contacts; CO: communication; SL: school; SR: self-reliance; AC: acceptance/self-consciousness; FI: finances
  3. 2 1: not difficult; 2: slightly difficult; 3: very difficult; 4: impossible
  4. a item pair with inter-item correlation > 0.8 in the adolescent version
  5. b,c,d,e,f,g,h item pairs with inter-item correlation > 0.8 in the parent version