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Table 2 Existing and New PROMIS-Deaf Profile Domains and Item Content

From: PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Existing PROMIS DomainItem IDItem Content
AngerEDANG15I felt like I was ready to explode
EDANG09I felt angry
AnxietyEDANX01I felt fearful
EDANX40I found it hard to focus on anything other than my anxiety
EDANX41My worries overwhelmed me
EDANX53I felt uneasy
DepressionEDDEP04I felt worthless
EDDEP06I felt helpless
EDDEP29I felt depressed
EDDEP41I felt hopeless
FatigueFATEXP20How often did you feel tired?
FATEXP42How much mental energy did you have on average?
FATEXP48How often did you find yourself getting tired easily?
FATIMP56How often were you too tired to socialize with your friends?
FATIMP53How often were you too tired to take a short walk?
FATIMP25How often was it an effort to carry on a conversation because of your fatigue?
FATIMP13How often were you too tired to do errands?
FATIMP26How often were you too tired to socialize with your family?
FATEXP18How often did you run out of energy?
FATEXP26How often were you too tired to enjoy life?
Global HealthGlobal01In general, would you say your health is …
Global02In general, would you say your quality of life is …
Global03In general, how would you rate your physical health...
Global04In general, how would you rate your mental health, including your mood and your ability to think?
Global05In general, how would you rate your satisfaction with your social activities and
Global06To what extent are you able to carry out your everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair?
Global07In the past 7 days, how would you rate your pain on average?
Global08In the past 7 days, how would you rate your fatigue on average?
Global09rIn general, please rate how well you carry out your usual social activities and roles. (This includes activities at home, at work and in your community, and responsibilities as a parent, child, spouse, employee, friend, etc.)
Global10In the past 7 days, how often have you been bothered by emotional problems such as feeling anxious, depressed or irritable?
Social Health-SupportFSE31053x2dI have someone who will pay attention to me when I need to discuss something.
FSE31059x2dI have someone to confide in about my problems
SS12xI have someone who makes me feel appreciated
SSQ3x2dI have someone to go to when I have a bad day
FSE31069x2I have someone who understands my problems
SSECaPS6dI have someone I trust to share my feelings with.
New PROMIS-Deaf Profile DomainItem IDItem Content
Communication HealthComm03I feel my life is good even though I am deaf or hard of hearing.
Comm07I am satisfied with the way I communicate with deaf/hh people
Comm13In general, I feel people accept me as a person who is deaf or hard of hearing.
Comm15People who are close to me accept me as a person who is deaf or hard of hearing.
Comm16I am able to easily get the information I need to make decisions
Comm17People closest to me share the same communication and language.
Comm18People close to me make an effort to communicate with me because I am deaf or hard of hearing.
Comm19I have friends who are like me and can understand what it is like to be deaf or hard of hearing.
Early Life Communication Experiences (ELCE)ELCE03Thinking about the person/caregiver/parent who took care of you the most when you were growing up, how much did this person understand you?
ELCE04Thinking about the person/caregiver/parent who took care of you the most when you were growing up, how much did you understand this person?
ELCE05When you were growing up, how often did you feel included in family conversations or discussions?
ELCE06rWhen you were growing up, how often did you feel ignored or left out by your family?