Table 2 Existing and New PROMIS-Deaf Profile Domains and Item Content

Existing PROMIS Domain

Item ID

Item Content

Anger

EDANG15

I felt like I was ready to explode

EDANG09

I felt angry

Anxiety

EDANX01

I felt fearful

EDANX40

I found it hard to focus on anything other than my anxiety

EDANX41

My worries overwhelmed me

EDANX53

I felt uneasy

Depression

EDDEP04

I felt worthless

EDDEP06

I felt helpless

EDDEP29

I felt depressed

EDDEP41

I felt hopeless

Fatigue

FATEXP20

How often did you feel tired?

FATEXP42

How much mental energy did you have on average?

FATEXP48

How often did you find yourself getting tired easily?

FATIMP56

How often were you too tired to socialize with your friends?

FATIMP53

How often were you too tired to take a short walk?

FATIMP25

How often was it an effort to carry on a conversation because of your fatigue?

FATIMP13

How often were you too tired to do errands?

FATIMP26

How often were you too tired to socialize with your family?

FATEXP18

How often did you run out of energy?

FATEXP26

How often were you too tired to enjoy life?

Global Health

Global01

In general, would you say your health is …

Global02

In general, would you say your quality of life is …

Global03

In general, how would you rate your physical health...

Global04

In general, how would you rate your mental health, including your mood and your ability to think?

Global05

In general, how would you rate your satisfaction with your social activities and

Global06

To what extent are you able to carry out your everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair?

Global07

In the past 7 days, how would you rate your pain on average?

Global08

In the past 7 days, how would you rate your fatigue on average?

Global09r

In general, please rate how well you carry out your usual social activities and roles. (This includes activities at home, at work and in your community, and responsibilities as a parent, child, spouse, employee, friend, etc.)

Global10

In the past 7 days, how often have you been bothered by emotional problems such as feeling anxious, depressed or irritable?

Social Health-Support

FSE31053x2d

I have someone who will pay attention to me when I need to discuss something.

FSE31059x2d

I have someone to confide in about my problems

SS12x

I have someone who makes me feel appreciated

SSQ3x2d

I have someone to go to when I have a bad day

FSE31069x2

I have someone who understands my problems

SSECaPS6d

I have someone I trust to share my feelings with.

New PROMIS-Deaf Profile Domain

Item ID

Item Content

Communication Health

Comm03

I feel my life is good even though I am deaf or hard of hearing.

Comm07

I am satisfied with the way I communicate with deaf/hh people

Comm13

In general, I feel people accept me as a person who is deaf or hard of hearing.

Comm15

People who are close to me accept me as a person who is deaf or hard of hearing.

Comm16

I am able to easily get the information I need to make decisions

Comm17

People closest to me share the same communication and language.

Comm18

People close to me make an effort to communicate with me because I am deaf or hard of hearing.

Comm19

I have friends who are like me and can understand what it is like to be deaf or hard of hearing.

Early Life Communication Experiences (ELCE)

ELCE03

Thinking about the person/caregiver/parent who took care of you the most when you were growing up, how much did this person understand you?

ELCE04

Thinking about the person/caregiver/parent who took care of you the most when you were growing up, how much did you understand this person?

ELCE05

When you were growing up, how often did you feel included in family conversations or discussions?

ELCE06r

When you were growing up, how often did you feel ignored or left out by your family?