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Table 6 Frequency of agreement in each item of Phenylketonuria Perceived Barrier to Treatment Inventory according to adherence and age group

From: Development of an inventory to assess perceived barriers related to PKU treatment

Perceived barriers (items)Adherence statusaAge group
Good Adherence (n = 12)
n (%)
Poor Adherence (n = 10)
n (%)
Fisher’s Exact test
p
Younger than 18 years old
(n = 11)
n (%)
18 years old or older
(n = 12)
n (%)
Fisher’s Exact test
p
Patient-related factors
 14 (57.1)3 (42.9)1.0001 (14.3)6 (85.7)0.069
 21 (16.7)5 (83.3)0.0561 (16.7)5 (83.3)0.155
 31 (50.0)1 (50.0)1.00002 (100)0.478
 44 (57.1)3 (42.9)1.0002 (28.6)5 (71.4)0.371
 52 (40.0)3 (60.0)0.62405 (100)0.037
 61 (25.0)3 (75.0)0.2931 (25.0)3 (75.0)0.590
 704 (100)0.0291 (25.0)3 (75.0)0.590
 84 (40.0)6 (60.0)0.3914 (36.4)7 (63.6)0.414
 101 (33.3)2 (66.7)0.5711 (33.3)2 (66.7)1.000
Social Economic- related factors
 120 (0)2 (100)0.1951 (33.3)2 (66.7)1.000
 130 (0)2 (100)0.1950 (0)3 (100)0.217
Treatment-related factors
 141 (20.0)4 (80.0)0.1352 (40.0)3 (60.0)1.000
 152 (40.0)3 (60.0)0.6241 (16.7)5 (83.3)0.155
 162 (28.6)5 (71.4)0.1723 (42.9)4 (57.1)1.000
 172 (40.0)3 (60.0)0.6241 (20.0)4 (80.0)0.317
 185 (50.0)5 (50.0)1.0003 (27.3)8 (72.7)0.100
 199 (52.9)8 (47.1)1.0007 (38.9)11 (61.1)0.155
 205 (35.7)9 (64.3)0.0314 (26.7)11 (73.3)0.009
Condition-related factors
 215 (45.5)6 (54.6)0.6705 (41.7)7 (58.3)0.684
 223 (42.9)4 (57.1)0.6522 (28.6)5 (71.4)0.371
Health care team and system-related factors
 230 (0)2 (100)0.1950 (0)2 (100)0.478
 241 (33.3)2 (66.7)0.5711 (33.3)2 (66.7)1.000
 251 (33.3)2 (66.7)0.5711 (33.3)2 (66.7)1.000
 263 (42.9)4 (57.1)0.6525 (71.4)2 (28.6)0.193
 274 (44.4)5 (55.6)0.6664 (44.4)5 (55.6)1.000
  1. Notes. Patient adherence = phenylalanine level according to the last blood exam prior to study
  2. a One patient had no information regarding recent adherence
  3. Statistic significances are printed in bold font