Table 6 Frequency of agreement in each item of Phenylketonuria Perceived Barrier to Treatment Inventory according to adherence and age group
From: Development of an inventory to assess perceived barriers related to PKU treatment
| Perceived barriers (items) | Adherence statusa | Age group | ||||
|---|---|---|---|---|---|---|
| Good Adherence (n = 12) n (%) | Poor Adherence (n = 10) n (%) | Fisher’s Exact test p | Younger than 18 years old (n = 11) n (%) | 18 years old or older (n = 12) n (%) | Fisher’s Exact test p | |
| Patient-related factors | ||||||
| 1 | 4 (57.1) | 3 (42.9) | 1.000 | 1 (14.3) | 6 (85.7) | 0.069 |
| 2 | 1 (16.7) | 5 (83.3) | 0.056 | 1 (16.7) | 5 (83.3) | 0.155 |
| 3 | 1 (50.0) | 1 (50.0) | 1.000 | 0 | 2 (100) | 0.478 |
| 4 | 4 (57.1) | 3 (42.9) | 1.000 | 2 (28.6) | 5 (71.4) | 0.371 |
| 5 | 2 (40.0) | 3 (60.0) | 0.624 | 0 | 5 (100) | 0.037 |
| 6 | 1 (25.0) | 3 (75.0) | 0.293 | 1 (25.0) | 3 (75.0) | 0.590 |
| 7 | 0 | 4 (100) | 0.029 | 1 (25.0) | 3 (75.0) | 0.590 |
| 8 | 4 (40.0) | 6 (60.0) | 0.391 | 4 (36.4) | 7 (63.6) | 0.414 |
| 10 | 1 (33.3) | 2 (66.7) | 0.571 | 1 (33.3) | 2 (66.7) | 1.000 |
| Social Economic- related factors | ||||||
| 12 | 0 (0) | 2 (100) | 0.195 | 1 (33.3) | 2 (66.7) | 1.000 |
| 13 | 0 (0) | 2 (100) | 0.195 | 0 (0) | 3 (100) | 0.217 |
| Treatment-related factors | ||||||
| 14 | 1 (20.0) | 4 (80.0) | 0.135 | 2 (40.0) | 3 (60.0) | 1.000 |
| 15 | 2 (40.0) | 3 (60.0) | 0.624 | 1 (16.7) | 5 (83.3) | 0.155 |
| 16 | 2 (28.6) | 5 (71.4) | 0.172 | 3 (42.9) | 4 (57.1) | 1.000 |
| 17 | 2 (40.0) | 3 (60.0) | 0.624 | 1 (20.0) | 4 (80.0) | 0.317 |
| 18 | 5 (50.0) | 5 (50.0) | 1.000 | 3 (27.3) | 8 (72.7) | 0.100 |
| 19 | 9 (52.9) | 8 (47.1) | 1.000 | 7 (38.9) | 11 (61.1) | 0.155 |
| 20 | 5 (35.7) | 9 (64.3) | 0.031 | 4 (26.7) | 11 (73.3) | 0.009 |
| Condition-related factors | ||||||
| 21 | 5 (45.5) | 6 (54.6) | 0.670 | 5 (41.7) | 7 (58.3) | 0.684 |
| 22 | 3 (42.9) | 4 (57.1) | 0.652 | 2 (28.6) | 5 (71.4) | 0.371 |
| Health care team and system-related factors | ||||||
| 23 | 0 (0) | 2 (100) | 0.195 | 0 (0) | 2 (100) | 0.478 |
| 24 | 1 (33.3) | 2 (66.7) | 0.571 | 1 (33.3) | 2 (66.7) | 1.000 |
| 25 | 1 (33.3) | 2 (66.7) | 0.571 | 1 (33.3) | 2 (66.7) | 1.000 |
| 26 | 3 (42.9) | 4 (57.1) | 0.652 | 5 (71.4) | 2 (28.6) | 0.193 |
| 27 | 4 (44.4) | 5 (55.6) | 0.666 | 4 (44.4) | 5 (55.6) | 1.000 |