From: Development of an inventory to assess perceived barriers related to PKU treatment
Variable | Phenylketonuria Perceived Barrier to Treatment Inventory scores Mdn [IQR] | Mann-Whitney test (p) |
---|---|---|
Age group | 20.500 (0.005) | |
Caregivers of patients 6 to 12 and patients 13 to 17 y.o. (n = 11) | 4 [3.0–5.0] | |
18 years old or older (n = 12) | 9 [7.3–11.8] | |
Current Phe Adherencea | 20.000 (0.009) | |
Good (n = 12) | 4 [3.0–8.0] | |
Poor (n = 10) | 9.5 [5.0–13.3] | |
Current Median Phe Adherencea | 33.000 (0.073) | |
Good (n = 10) | 4.5 [2.8–8.5] | |
Poor (n = 12) | 7.5 [5.0–11.8] | |
Sex | 46.500 (0.295) | |
Woman (n = 9) | 5 [3.5–8.0] | |
Man (n = 14) | 7.5 [3.8–11.3] | |
Mothers’ level of education | 43.000 (0.283) | |
4 years or less (n = 8) | 9 [4.3–11.5] | |
5 to 11 years (n = 15) | 5 [4.0–8.0] | |
Fathers’ level of educationb | 24.000 (0.185) | |
4 years or less (n = 6) | 9 [4.5–11.8] | |
5 to 11 years (n = 13) | 5 [3.5–8.0] | |
PKU Classification c | 49.500 (0.306) | |
Classical (n = 11) | 8 [4.0–12] | |
Mild (n = 12) | 5 [3.3–9.5] | |
Beginning of treatment | 59.000 (0.948) | |
≤ 3 months of age (n = 15) | 7 [4.0–10.0] | |
> 3 months of age (n = 8) | 5 [3.3–10.8] |