From: Patient-reported outcomes item selection for bladder cancer patients in chemo- or immunotherapy
Focus group interviews | Overall PRO-CTCAE symptoms grade 2-4 for 29 patients* (listed by falling frequency, %) | PRO-CTCAE symptoms grade 2-4 in relation to hospital admission (patients receiving n=13 chemo- / n=7 immunotherapy)** | Final included PRO-CTCAE symptom | |
---|---|---|---|---|
Nurses, n=3 | Doctors, n=4 | |||
Urinary symptoms | Urinary symptoms/catheter problems/infections | Frequent urination (48) | Frequent urination (2) | Frequent urination |
Fatigue | Fatigue | Fatigue (36) | Fatigue (9) | Fatigue |
Urinary urgency (30) | ||||
Dry mouth (25) | Dry mouth (2) | |||
Nausea | Nausea | Nausea (22) | Nausea (4) | Nausea |
Pain | Pain | General pain (22) | General pain (7) | Pain |
Decreased appetite | Decreased appetite | Decreased appetite (21) | Decreased appetite (4) | Decreased appetite |
Swelling | Swelling | Swelling (21) | Swelling (5) | Swelling |
Insomnia | Insomnia (20) | Insomnia (5) | Insomnia | |
Shortness of breath | Shortness of breath (19) | Shortness of breath (5) | Shortness of breath | |
Constipation | Constipation (15) | Constipation (1) | Constipation | |
Abdominal pain | Abdominal pain (15) | Abdominal pain (5) | ||
Sad (15) | ||||
Heart palpitations | Heart palpitations (14) | Heart palpitations (1) | Heart palpitations | |
Painful urination (13) | ||||
Muscle pain (12) | Muscle pain (3) | |||
Taste changes | Taste changes (12) | Taste changes (3) | ||
Decreased libido (11) | ||||
Urinary incontinence (11) | ||||
Diarrhea | Diarrhea (11) | Diarrhea (4) | Diarrhea | |
Chills (11) | Chills (1) | Chills | ||
Cough (10) | ||||
Headache (10) | ||||
Neuropathy | Numbness & tingling (9) | |||
Dry skin (9) | Dry skin (1) | |||
Discouraged (8) | ||||
Ringing in ears (8) | ||||
Itching (7) | Itching (1) | Itching | ||
Anxiety | Anxious (6) | Anxious | ||
Dizziness (5) | ||||
Difficulty swallowing (5) | ||||
Increased sweating (4) | ||||
Mouth /throat soars (4) | ||||
Joint pain (4) | Joint pain (1) | |||
Heartburn (3) | ||||
Blurred vision (3) | ||||
Hair loss (3) | ||||
Hot flashes/flushes (2) | ||||
Vomiting | Vomiting (2) | Vomiting | ||
Memory (1) | Memory (1) | |||
Concentration (1) | Concentration (1) | |||
Weight loss | ||||
Stomatitis |