|
Age (mean), years
|
43.3 (SD 9.5)
|
37.9 (SD 6.3)
|
41.3 (SD 6.9)
|
38.1 (range 30–48)
|
|
Sex, n (%)
|
|
Male
|
1 (6.2)
|
2 (14.3)
|
0
|
1 (12.5)
|
|
Female
|
15 (93.8)
|
12 (85.7)
|
8 (100.0)
|
7 (87.5)
|
|
Ethnic background, n (%)
|
|
Hispanic or Latino
|
1 (6.2)
|
NR
|
NR
|
NR
|
|
Non-Hispanic and non-Latino
|
15 (93.8)
|
9 (64.3)
|
4 (50.0)
|
NR
|
|
Not asked/reported
|
0
|
5 (35.7)a
|
4 (50.0)a
|
8 (100.0)
|
|
Racial background, n (%)
|
|
Black
|
0
|
1 (7.1)
|
0
|
0
|
|
White
|
15 (93.8)
|
8 (57.1)
|
3 (37.5)
|
8 (100.0)
|
|
Asian
|
1 (6.2)
|
NR
|
0
|
0
|
|
Mixed African/White
|
0
|
NR
|
1 (12.5)
|
0
|
|
Not asked/reported
|
0
|
5 (35.7)a
|
4 (50.0)a
|
0
|
|
Country of residence, n (%)
|
|
USA
|
13 (81.3)
|
7 (50.0)
|
2 (25.0)
|
8 (100.0)
|
|
Canada
|
2 (12.5)
|
0
|
0
|
0
|
|
UK
|
1 (6.2)
|
2 (14.3)
|
2 (25.0)
|
0
|
|
Mexico
|
0
|
3 (21.4)
|
2 (25.0)
|
0
|
|
Spain
|
0
|
2 (14.3)
|
2 (25.0)
|
0
|
|
Relationship to child, n (%)
|
|
Mother
|
15 (93.8)
|
12 (85.7)
|
8 (100.0)
|
NR
|
|
Father
|
1 (6.2)
|
2 (14.3)
|
0
|
NR
|
|
Living status (for MPS II), n (%)
|
|
Married (living with partner, family or friends)
|
14 (87.5)
|
12 (85.7)
|
8 (100.0)
|
NR
|
|
Single (living alone)
|
2 (12.5)
|
1 (7.1)
|
0
|
NR
|
|
Other living arrangement, e.g. widowed
|
0
|
1 (7.1)
|
0
|
NR
|
|
Employment status, n (%)
|
|
Employed full/part time
|
8 (50.0)
|
9 (64.3)
|
4 (50.0)
|
5 (62.5)
|
|
Homemaker
|
7 (43.8)
|
5 (35.7)
|
4 (50.0)
|
NR
|
|
Unemployed/retired
|
1 (6.2)
|
0
|
0
|
3 (37.5)
|
|
Highest education level, n (%)
|
|
Elementary/primary school
|
0
|
2 (14.3)
|
0
|
0
|
|
High/secondary school
|
2 (12.5)
|
3 (21.4)
|
1 (12.5)
|
0
|
|
Associates degree, vocational, technical or trade school
|
0
|
1 (7.1)
|
3 (37.5)
|
0
|
|
Some college
|
3 (18.8)
|
1 (7.1)
|
3 (37.5)
|
3 (37.5)
|
|
College/university degree
|
9 (56.3)
|
5 (35.7)
|
0
|
2 (25.0)
|
|
Postgraduate/advanced/professional degree
|
2 (12.5)
|
2 (14.3)
|
1 (12.5)
|
3 (37.5)
|
