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Table 5 EORTC QLQ-C30 and supplemental items: Item-level endorsement frequencies (n = 18) from Stage 2

From: A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia

EORTC QLQ-C30
  Not at all % A little % Quite a bit % Very much %
1 Strenuous activities 0.0 38.9 44.4 16.7
2 Long walk 0.0 22.2 33.3 44.4
3 Short walk 27.8 55.6 11.1 5.6
4 Stay in bed/chair 27.8 44.4 27.8 0.0
5 Need help eating, dressing, washinga 77.8 16.7 5.6a 0.0a
6 Limited work or daily activities 11.1 44.4 33.3 11.1
7 Hobbies 33.3 33.3 27.8 5.6
8 Short of breath 27.8 38.9 22.2 11.1
9 Pain 27.8 16.7 27.8 27.8
10 Need to rest 16.7 27.8 33.3 22.2
11 Trouble sleeping 33.3 22.2 27.8 16.7
12 Felt weak 16.7 38.9 16.7 27.8
13 Lacked appetite 61.1 16.7 16.7 5.6
14 Nauseated 77.8 5.6 11.1 5.6
15 Vomiteda 88.9a 5.6a 5.6a 0.0a
16 Constipated 22.2 33.3 33.3 11.1
17 Diarrhea 66.7 22.2 5.6 5.6
18 Tired 11.1 44.4 22.2 22.2
19 Pain interfere daily activities 33.3 27.8 16.7 22.2
20 Difficulty concentrating 50.0 27.8 22.2 0.0
21 Feel tensea 33.3 61.1 5.6a 0.0a
22 Worry 22.2 61.1 5.6 11.1
23 Irritable 22.2 61.1 11.1 5.6
24 Depresseda 33.3 61.1 0.0a 5.6a
25 Remembering things 44.4 44.4 11.1 0.0
26 Family life 33.3 44.4 11.1 11.1
27 Social activities 22.2 27.8 33.3 16.7
28 Financial difficulties 38.9 38.9 16.7 5.6
   1 Very poor % 2% 3% 4% 5% 6% 7 Excellent %
29 Overall health 0.0 0.0 33.3 27.8 22.2 11.1 5.6
30 Overall quality of life 0.0 0.0 16.7 27.8 22.2 11.1 22.2
Supplemental items
  Not at all % A little % Quite a bit % Very much %
1 Bone aches or pains 38.9 27.8 16.7 16.7
2 Arms/legs weak 27.8 16.7 33.3 22.2
3 Slowed down 11.1 27.8 44.4 16.7
4 Easily tired 11.1 33.3 38.9 16.7
5 Lacked energy 16.7 22.2 44.4 16.7
6 Bruise 44.4 38.9 11.1 5.6
7 Dizzy 66.7 22.2 0.0 11.1
8 Exertion shortness of breath 22.2 22.2 44.4 11.1
9 Stop for breath when walking 33.3 27.8 27.8 11.1
10 Stairs/getting up from chair 27.8 27.8 27.8 16.7
11 Travel ability limitations 66.7 16.7 16.7 0.0
12 Heavy housework 11.1 16.7 27.8 44.4
13 Shopping exhausting 27.8 11.1 33.3 27.8
  1. aItem falls short of the WHOQOL criteria