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Table 4 EORTC QLQ-C30: Item-level endorsement frequencies (n = 14) from Stage 1

From: A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia

EORTC QLQ-C30
  Not at all % A little % Quite a bit % Very much %
1 Strenuous activities 7.1 28.6 42.9 21.4
2 Long walk 7.1 14.3 42.9 35.7
3 Short walk 35.7 50.0 14.3 0.0
4 Stay in bed/chair 57.1 21.4 14.3 7.1
5 Need help eating, dressing, washinga 85.7 14.3 0.0a 0.0a
6 Limited work or daily activities 14.3 57.1 28.6 0.0
7 Hobbies 35.7 28.6 14.3 21.4
8 Shortness of breath 14.3 64.3 14.3 7.1
9 Pain 50.0 21.4 21.4 7.1
10 Need to rest 7.1 35.7 35.7 21.4
11 Trouble sleeping 42.9 35.7 7.1 14.3
12 Feeling weak 7.1 57.1 14.3 21.4
13 Lack of appetite 28.6 50.0 42.9 7.1
14 Nauseaa 50.0 42.9 7.1a 0.0a
15 Vomitinga 71.4 28.6 0.0a 0.0a
16 Constipation 28.6 28.6 28.6 14.3
17 Diarrheaa 71.4 21.4 0.0a 7.1a
18 Tiredness 0.0 50.0 28.6 21.4
19 Pain interfere daily activities 42.9 28.6 14.3 14.3
20 Difficulty concentrating 50.0 35.7 14.3 0.0
21 Feeling tense 35.7 50.0 14.3 0.0
22 Worry 14.3 57.1 21.4 7.1
23 Irritable mood 14.3 71.4 14.3 0.0
24 Depressed mood 42.9 42.9 7.1 7.1
25 Remembering things 42.9 35.7 21.4 0.0
26 Family life 35.7 28.6 21.4 14.3
27 Social activities 14.3 28.6 50.0 7.1
28 Financial difficulties 57.1 28.6 7.1 7.1
  1 Very poor % 2% 3% 4% 5% 6% 7 Excellent %
29 Overall health 0.0 7.1 14.3 14.3 35.7 28.6 0.0
30 Overall quality of life 0.0 0.0 28.6 21.4 21.4 14.3 14.3
  1. aItem falls short of the WHOQOL criteria