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Table 3 Patient/surrogate and provider assessment of satisfaction with the TAILOR tool

From: We’re not all cut from the same cloth: TAILORing treatments for children with chronic conditions

Aggregate satisfaction domains across pilots

Total responses, n

Agree or strongly agree rating, n (%)

Patient/surrogate (parent, teacher)

 Data improved communication with provider

12

12 (100)

 TAILOR was a convenient way to share information with provider

12

11 (91.7)

 Helped understand outcomes of interest

12

12 (100)

 Helped provider make best plan for child/student care

12

12 (100)

 Helped provider understand client challenges and successes of implementing intervention.

12

11 (91.7)

 Helped patient/surrogate understand the successes of intervention

12

11 (91.7)

 Gave information that helped patient/surrogate and provider make decisions about child/student care

12

12 (100)

 TAILOR tool helped patient/surrogate track outcomes of interest a

7

6 (85.7)

 Would recommend TAILOR tool to others a

7

6 (85.7)

 Felt more involved in decisions about child/student care b

2

2 (100)

 Interested in using TAILOR tool to support decision making for child/student care in the future b

2

2 (100)

Providers (healthcare provider, consultant)

 Improved communication with patient/surrogate

18

17 (94.4)

 Increased patient/surrogate engagement in decision making

18

17 (94.4)

 Helped provider understand efficacy of interventions for child/student

18

18 (100)

 Gave provider information that helped decision making and communication with patient/surrogate about child/student care

18

16 (88.9)

 TAILOR tool was a convenient way to collect information from patient/surrogate

18

18 (100)

 Using the TAILOR tool took a reasonable amount of time

19

19 (100)

 The periodic survey data helped provider better understand trends in child/student outcomes of interest

18

16 (88.9)

 Would recommend TAILOR tool to others

19

18 (94.7)

 Reviewing the survey data took a reasonable amount of time d

15

14 (93.3)

 Gathered useful data from the child/student’s teacher b

2

2 (100)

 Would be interested in using a tool like TAILOR in the futureb

4

3 (75)

 Helped provider identify needs with patient/surrogate for future support and intervention c

3

2 (66.7)

  1. Key: a asked in ADHD and IPBI pilots only; b asked in ADHD pilot only; c asked in IPBI pilot only; d asked in ADHD and EI pilots only