From: We’re not all cut from the same cloth: TAILORing treatments for children with chronic conditions
Aggregate satisfaction domains across pilots | Total responses, n | Agree or strongly agree rating, n (%) |
---|---|---|
Patient/surrogate (parent, teacher) | ||
Data improved communication with provider | 12 | 12 (100) |
TAILOR was a convenient way to share information with provider | 12 | 11 (91.7) |
Helped understand outcomes of interest | 12 | 12 (100) |
Helped provider make best plan for child/student care | 12 | 12 (100) |
Helped provider understand client challenges and successes of implementing intervention. | 12 | 11 (91.7) |
Helped patient/surrogate understand the successes of intervention | 12 | 11 (91.7) |
Gave information that helped patient/surrogate and provider make decisions about child/student care | 12 | 12 (100) |
TAILOR tool helped patient/surrogate track outcomes of interest a | 7 | 6 (85.7) |
Would recommend TAILOR tool to others a | 7 | 6 (85.7) |
Felt more involved in decisions about child/student care b | 2 | 2 (100) |
Interested in using TAILOR tool to support decision making for child/student care in the future b | 2 | 2 (100) |
Providers (healthcare provider, consultant) | ||
Improved communication with patient/surrogate | 18 | 17 (94.4) |
Increased patient/surrogate engagement in decision making | 18 | 17 (94.4) |
Helped provider understand efficacy of interventions for child/student | 18 | 18 (100) |
Gave provider information that helped decision making and communication with patient/surrogate about child/student care | 18 | 16 (88.9) |
TAILOR tool was a convenient way to collect information from patient/surrogate | 18 | 18 (100) |
Using the TAILOR tool took a reasonable amount of time | 19 | 19 (100) |
The periodic survey data helped provider better understand trends in child/student outcomes of interest | 18 | 16 (88.9) |
Would recommend TAILOR tool to others | 19 | 18 (94.7) |
Reviewing the survey data took a reasonable amount of time d | 15 | 14 (93.3) |
Gathered useful data from the child/student’s teacher b | 2 | 2 (100) |
Would be interested in using a tool like TAILOR in the futureb | 4 | 3 (75) |
Helped provider identify needs with patient/surrogate for future support and intervention c | 3 | 2 (66.7) |