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Table 1 Overview of TAILOR pilot projects

From: We’re not all cut from the same cloth: TAILORing treatments for children with chronic conditions

Pilot population

Project description

Target population(s) Usual frequency duration of individual data collection

Launch date

Children with attention deficit hyperactivity disorder (ADHD) treated in an outpatient clinic)

The Vanderbilt ADHD TAILOR tool allowed Vanderbilt healthcare providers to send the Vanderbilt ADHD Diagnostic and/or Follow-up Rating Scale [26] questions to parents electronically. TAILOR also queried the child’s teacher with parent consent. The provider received survey results by secure email before the child’s next planned clinic visit.

The ADHD pilot included one attending physician’s resident clinic.

Parent/guardian; teacher

Weekly for 1–4 weeks

January 2016

Children with autism spectrum disorder or other developmental delays receiving services from the Early Intervention team

The Vanderbilt TAILOR Early Intervention (EI) tool allowed Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) behavioral consultants to send brief text message surveys to a child’s parent to collect outcomes. Questions were developed based on previously employed TRIAD program assessments, and queried the frequency of work on a skill area on a given day, parent’s confidence in working on the skill, and the child’s success with a given skill. The consultant was able to view the latest survey results before each home visit.

Parent/guardian

Twice/week for 3–6 weeks

April 2016

Adolescents with autism spectrum disorder and challenging behaviors receiving services from the Intensive Partnership for Behavior Intervention (IPBI) team

The TAILOR IPBI tool enabled behavioral consultants to collect information about student behavior and engagement from educators, with questions designed using existing in-house IPBI assessments.

Our IPBI TAILOR implementation encompassed two separate academic years, 2016–2017 and 2017–2018.

Teachera

Twice/week for 1–2 academic semesters

September 2016

  1. Note: a a range of 1–4 teachers per child shared data using the IPBI tool