Table 1 Background characteristics
% | Mean (SD) | ||||
Participating siblings (n = 91) | |||||
Age in years | 15.2 (2.7) | ||||
Sex (Female) | 67 | ||||
Current education | |||||
primary school | 9.9 | ||||
secondary school | 65.9 | ||||
advanced education | 18.7 | ||||
None anymore | 5.5 | ||||
Strengths and difficulties (SDQ) a | Siblings (n = 91) | Normb (n = 1353) | |||
Borderline/ Abnormal (%) | Total f Borderline/ Abnormal (%) | Mean (SD) | Weighted mean (SD) | Effect size | |
Emotional symptoms | 7.7 / 22.0 | 29.7* | 3.5 (2.6) | 2.4 (1.9) | 0.58** |
Conduct problems | 4.4 / 6.6 | 11.0* | 1.8 (1.5) | 1.9 (1.5) | −0.06 |
Hyperactivity/inattention | 12.1 / 28.6 | 40.7*** | 4.7 (2.7) | 3.8 (2.3) | 0.37** |
Prosocial behavior | 3.3 / 5.5 | 8.8** | 8.2 (1.8) | 7.3 (2.3) | 0.41** |
Total difficulties | 15.4 / 19.8 | 35.2** | 11.9 (5.9) | 10.0 (4.9) | 0.39** |
Child with chronic condition | % | Mean (SD) | |||
Age child in years (n = 90) | 13.8 (4.4) | ||||
Age at disease onset (n = 91) | |||||
during or shortly after birth | 46.2 | ||||
0–5 years old | 27.5 | ||||
6–12 years old | 19.8 | ||||
13–18 years old | 6.6 | ||||
First named diagnosis | |||||
neurological disorder | 12.1 | ||||
cardiovascular disorder | 11.0 | ||||
cystic fibrosis | 11.0 | ||||
chromosomal/syndromal disorder | 8.8 | ||||
metabolic disorder | 8.8 | ||||
connective tissue disorder | 7.7 | ||||
disorder in the locomotor system | 6.6 | ||||
Crohn’s disease | 6.6 | ||||
other | 27.5 | ||||