Table 1 Literature review search terms

#1

Consensus/guideline/ review terms

‘consensus’/exp. OR consensus:ab,ti OR ‘review’/exp. OR review:ab,ti OR ‘practice guideline’/exp. OR guideline*:ab,ti OR ‘expert opinion’:ab,ti NOT ‘institutional review board’

#2

Response scale terms

‘response scale’:ab,ti OR ‘response scales’:ab,ti OR likert:ab,ti OR ‘likert scale’/exp. OR ‘visual analog scale’:ab,ti OR ‘visual analog scales’:ab,ti OR ‘visual analogue scale’:ab,ti OR ‘visual analog scale’/exp. OR ‘numerical rating scale’:ab,ti OR ‘numerical rating scales’:ab,ti OR ‘verbal rating scale’:ab,ti OR ‘verbal rating scales’:ab,ti OR ‘competence scale’:ab,ti OR ‘competence scales’:ab,ti OR ‘frequency scale’:ab,ti OR ‘frequency scales’:ab,ti OR ‘extent scale’:ab,ti OR ‘extent scales’:ab,ti OR ‘comparison scale’:ab,ti OR ‘comparison scales’:ab,ti OR ‘performance scale’:ab,ti OR ‘performance scales’:ab,ti OR ‘developmental scale’:ab,ti OR ‘developmental scales’:ab,ti OR ‘qualitative scale’:ab,ti OR ‘qualitative scales’:ab,ti OR ‘agreement scale’:ab,ti OR ‘agreement scales’:ab,ti OR ‘categorical scale’:ab,ti OR ‘categorical scales’:ab,ti

#3

Selecting terms

select*:ab,ti OR choose:ab,ti OR criteria:ab,ti OR compare:ab,ti OR comparison:ab,ti

#4

Human studies terms

‘animal’/exp. NOT ‘human’/exp.

#5

Clinical trial terms

‘randomized controlled trial’/exp. OR ‘controlled clinical trial’/exp. OR ‘clinical trial’/exp. OR ‘phase 1 clinical trial’/exp. OR ‘phase 2 clinical trial’/exp. OR ‘phase 3 clinical trial’/exp. OR ‘phase 4 clinical trial’/exp. OR ‘multicenter study’/exp. OR random*:ab,ti OR placebo:ab,ti OR trial:ab,ti OR groups:ti OR (singl*:ab,ti OR doubl*:ab,ti OR trebl*:ab,ti OR tripl*:ab,ti AND (mask*:ab,ti OR blind*:ab,ti OR dumm*:ab,ti)) OR ‘double blind procedure’/exp. OR ‘single blind procedure’/exp. OR ‘random allocation’:ab,ti OR ‘open label’:ab,ti OR ‘open labeled’:ab,ti OR ‘open labelled’:ab,ti OR ‘placebo’/exp. OR ‘randomization’/exp. OR ‘crossover procedure’/exp.

#6

Final encompassing terms

#1 AND #2 AND #3 NOT #4 NOT #5 AND ([article]/

#7

Comparison of scales terms

TI ((scale OR measure) N5 (compare* OR merit* OR evaluat* OR consider*)) OR AB ((scale OR measure) N5 (compare* OR merit* OR evaluat* OR consider*))

#8

Merits of scales terms

TI (scor* OR psychometric* OR responsive* OR “cross culture” OR “cross cultural” OR collect* OR “anchor placement” OR “data collection method” OR “internal consistency” OR “test retest” OR construct OR interrater OR standardization OR reliability OR validity OR sensitivity OR specificity OR “item response” OR “intraclass correlation”) OR AB (scor* OR psychometric* OR responsive* OR “cross culture” OR “cross cultural” OR collect* OR “anchor placement” OR “data collection method” OR “internal consistency” OR “test retest” OR construct OR interrater OR standardization OR reliability OR validity OR sensitivity OR specificity OR “item response” OR “intraclass correlation”) OR SU (scor* OR psychometric* OR responsive* OR “cross culture” OR “cross cultural” OR collect* OR “anchor placement” OR “data collection method” OR “internal consistency” OR “test retest” OR construct OR interrater OR standardization OR reliability OR validity OR sensitivity OR specificity OR “item response” OR “intraclass correlation”)

#9

Review/consensus terms

TI (“expert opinion” OR “consensus development”) OR AB (“expert opinion” OR “consensus development”) OR DE “Literature Review”

#10

Final encompassing terms

#2 AND #7 AND #8 NOT #9 NOT #4 NOT #5 AND ([article]/lim OR [article in press]/lim OR [review]/lim) AND [english]/lim AND [2004–2014]/py

#11

PRO terms

‘patient satisfaction’/exp. OR (patient* NEAR/2 satisfaction):ab,ti OR (patient* NEAR/2 reported):ab,ti OR ‘self report’/exp. OR (self NEAR/1 report*):ab,ti OR ‘patient preference’/exp. OR (patient* NEAR/2 preference*):ab,ti OR (patient* NEAR/1 assess*):ab,ti OR ‘self evaluation’:ab,ti OR ‘self evaluations’:ab,ti OR (patient* NEAR/2 rating):ab,ti OR (patient* NEAR/2 rated):ab,ti OR ‘self-completed’:ab,ti OR ‘self-administered’:ab,ti OR (self NEAR/1 assessment*):ab,ti OR ‘self-rated’:ab,ti OR ‘patient based outcome’:ab,ti OR ‘self evaluation’/exp. OR experience*:ab,ti

#12

Format terms

format:ab,ti OR structur*:ab,ti OR ((multiple OR multi OR single OR number) NEAR/4 item*):ab,ti OR (anchor* NEAR/4 (wording OR item*)):ab,ti

#13

Final encompassing terms

#2 AND #11 AND #12 NOT #4 AND ([article]/lim OR [article in press]/lim OR [review]/lim) AND [english]/lim AND [2004–2014]/py

#14

Scoring/ psychometric properties

‘instrumentation’/exp. OR ‘validation study’/exp. OR ‘reproducibility’/exp. OR reproducib*:ab,ti OR ‘psychometrics’ OR psychometr*:ab,ti OR clinimetr*:ab,ti OR clinometr*:ab,ti OR ‘observer variation’/exp. OR observer AND variation:ab,ti OR ‘discriminant analysis’/exp. OR reliab*:ab,ti OR valid*:ab,ti OR coefficient:ab,ti OR ‘internal consistency’:ab,ti OR (cronbach*:ab,ti AND (alpha:ab,ti OR alphas:ab,ti)) OR ‘item correlation’:ab,ti OR ‘item correlations’:ab,ti OR ‘item selection’:ab,ti OR ‘item selections’:ab,ti OR ‘item reduction’:ab,ti OR ‘item reductions’:ab,ti OR agreement OR precision OR imprecision OR ‘precise values’ OR test–retest:ab,ti OR (test:ab,ti AND retest:ab,ti) OR (reliab*:ab,ti AND (test:ab,ti OR retest:ab,ti)) OR stability:ab,ti OR interrater:ab,ti OR ‘inter rater’:ab,ti OR intrarater:ab,ti OR ‘intra rater’:ab,ti OR intertester:ab,ti OR ‘inter tester’:ab,ti OR intratester:ab,ti OR ‘intra tester’:ab,ti OR interobserver:ab,ti OR ‘inter observer’:ab,ti OR intraobserver:ab,ti OR ‘intra observer’:ab,ti OR intertechnician:ab,ti OR intratechnician:ab,ti OR ‘intra technician’:ab,ti OR interexaminer:ab,ti OR ‘inter examiner’:ab,ti OR intraexaminer:ab,ti OR ‘intra examiner’:ab,ti OR interassay:ab,ti OR ‘inter assay’:ab,ti OR intraassay:ab,ti OR ‘intra assay’:ab,ti OR interindividual:ab,ti OR ‘inter individual’:ab,ti OR intraindividual:ab,ti OR ‘intra individual’:ab,ti OR interparticipant:ab,ti OR ‘inter participant’:ab,ti OR intraparticipant:ab,ti OR ‘intra participant’:ab,ti OR kappa:ab,ti OR kappa’s:ab,ti OR kappas:ab,ti OR ‘coefficient of variation’:ab,ti OR repeatab* OR (replicab* OR repeated AND (measure OR measures OR findings OR result OR results OR test OR tests)) OR generaliza*:ab,ti OR generalisa*:ab,ti OR concordance:ab,ti OR (intraclass:ab,ti AND correlation*:ab,ti) OR discriminative:ab,ti OR ‘known group’:ab,ti OR ‘factor analysis’:ab,ti OR ‘factor analyses’:ab,ti OR ‘factor structure’:ab,ti OR ‘factor structures’:ab,ti OR dimensionality:ab,ti OR subscale*:ab,ti OR ‘multitrait scaling analysis’:ab,ti OR ‘multitrait scaling analyses’:ab,ti OR ‘item discriminant’:ab,ti OR ‘interscale correlation’:ab,ti OR ‘interscale correlations’:ab,ti OR (error:ab,ti OR errors:ab,ti AND (measure*:ab,ti OR correlat*:ab,ti OR evaluat*:ab,ti OR accuracy:ab,ti OR accurate:ab,ti OR precision:ab,ti OR mean:ab,ti)) OR ‘individual variability’:ab,ti OR ‘interval variability’:ab,ti OR ‘rate variability’:ab,ti OR ‘variability analysis’:ab,ti OR (uncertainty:ab,ti AND (measurement:ab,ti OR measuring:ab,ti)) OR ‘standard error of measurement’:ab,ti OR sensitiv*:ab,ti OR responsive*:ab,ti OR (limit:ab,ti AND detection:ab,ti) OR ‘minimal detectable concentration’:ab,ti OR interpretab*:ab,ti OR (small*:ab,ti AND (real:ab,ti OR detectable:ab,ti) AND (change:ab,ti OR difference:ab,ti)) OR ‘meaningful change’:ab,ti OR ‘minimal important change’:ab,ti OR ‘minimal important difference’:ab,ti OR ‘minimally important change’:ab,ti OR ‘minimally important difference’:ab,ti OR ‘minimal detectable change’:ab,ti OR ‘minimal detectable difference’:ab,ti OR ‘minimally detectable change’:ab,ti OR ‘minimally detectable difference’:ab,ti OR ‘minimal real change’:ab,ti OR ‘minimal real difference’:ab,ti OR ‘minimally real change’:ab,ti OR ‘minimally real difference’:ab,ti OR ‘ceiling effect’:ab,ti OR ‘floor effect’:ab,ti OR ‘item response model’:ab,ti OR irt:ab,ti OR rasch:ab,ti OR ‘differential item functioning’:ab,ti OR dif:ab,ti OR ‘computer adaptive testing’:ab,ti OR ‘item bank’:ab,ti OR ‘cross-cultural equivalence’:ab,ti

#15

Final encompassing terms

#2 AND #11 AND #3 AND #14 NOT #4 AND ([article]/lim OR [article in press]/lim OR [review]/lim) AND [english]/lim AND [2004–2014]/py

#16

RA (fatigue) terms

‘rheumatoid arthritis’/exp./mj AND ‘fatigue’/exp. OR (‘rheumatoid arthritis’:ab,ti AND fatigue:ab,ti)

#17

Asthma terms

‘asthma’/exp./mj OR asthma:ab,ti

#18

Cognition terms

‘cognition’/exp./mj OR cognition:ab,ti

#19

Depression terms

‘depression’/exp./mj OR depression:ab,ti

#20

SCLC terms

‘lung small cell cancer’/exp./mj OR ‘small cell lung cancer’:ab,ti

#21

Pain terms

‘pain’/exp./mj OR pain:ab,ti

#22

Sub-final terms

#16 OR #17 OR #18 OR #19 OR #20 OR #21

#23

Final encompassing terms

#2 AND #11 AND #3 AND #22 NOT #4 AND ([article]/lim OR [article in press]/lim OR [review]/lim) AND [english]/lim AND [2004–2014]/py