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Table 3 Healthcare Utilization for TSC Over the Past Year

From: Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

Health Care Use TSC-AML Pediatric Patients (Age < = 18) (N = 31) TSC-AML Adult Patients (Age > 18) (N = 79) TSC-AML All Patients (N = 110)
Physician visits in past year, n (%) 31 (100%) 78 (98.7%) 109 (99.1%)
 Mean (SD) no. visits/year 34.7 (344) 28.6 (22.3) 30.4 (26.3)
 Median (IQR) no. visits/year 24.0 (21.0) 24.0 (21.0) 24.0 (22.5)
Procedures/tests in past year, n (%) 31 (100%) 78 (99%) 109 (99%)
 Mean (SD) no. tests/year 11.9 (7.9) 11.3 (8.3) 11.5 (8.1)
 Median (IQR) no. tests/year 11.0 (13.0) 9.0 (9.0) 10.0 (9.0)
Hospitalizations in past year, n (%) 13 (42%) 35 (44%) 48 (44%)
# times admitted in past year
 Mean (SD) no. hospitalizations/year 2.4 (1.9) 2.4 (1.4) 2.4 (1.5)
 Median (IQR) no. hospitalizations/year 2.0 (2.0) 2.0 (2.0) 2.0 (2.0)
Days in hospital
 Mean (SD) no. days/hospitalization 5.1 (3.7) 5.6 (3.2) 5.5 (3.3)
 Median (IQR) no. days/hospitalization 5.0 (5.0) 5.0 (5.0) 5.0 (4.5)
Emergency room visits in past year, n (%) 14 (45%) 29 (37%) 43 (39%)
# times in ER in past year
 Mean (SD) no. visits/year 2.6 (1.7) 2.4 (1.4) 2.4 (1.5)
 Median (IQR) no. visits/year 2.0 (2.0) 2.0 (2.0) 2.0 (2.0)
  1. AML Angiomyolipoma, IQR interquartile range, SD standard deviation, TSC Tuberous sclerosis complex