Table 3 Healthcare Utilization for TSC Over the Past Year
Health Care Use | TSC-AML Pediatric Patients (Age < = 18) (N = 31) | TSC-AML Adult Patients (Age > 18) (N = 79) | TSC-AML All Patients (N = 110) |
|---|---|---|---|
Physician visits in past year, n (%) | 31 (100%) | 78 (98.7%) | 109 (99.1%) |
 Mean (SD) no. visits/year | 34.7 (344) | 28.6 (22.3) | 30.4 (26.3) |
 Median (IQR) no. visits/year | 24.0 (21.0) | 24.0 (21.0) | 24.0 (22.5) |
Procedures/tests in past year, n (%) | 31 (100%) | 78 (99%) | 109 (99%) |
 Mean (SD) no. tests/year | 11.9 (7.9) | 11.3 (8.3) | 11.5 (8.1) |
 Median (IQR) no. tests/year | 11.0 (13.0) | 9.0 (9.0) | 10.0 (9.0) |
Hospitalizations in past year, n (%) | 13 (42%) | 35 (44%) | 48 (44%) |
# times admitted in past year | |||
 Mean (SD) no. hospitalizations/year | 2.4 (1.9) | 2.4 (1.4) | 2.4 (1.5) |
 Median (IQR) no. hospitalizations/year | 2.0 (2.0) | 2.0 (2.0) | 2.0 (2.0) |
Days in hospital | |||
 Mean (SD) no. days/hospitalization | 5.1 (3.7) | 5.6 (3.2) | 5.5 (3.3) |
 Median (IQR) no. days/hospitalization | 5.0 (5.0) | 5.0 (5.0) | 5.0 (4.5) |
Emergency room visits in past year, n (%) | 14 (45%) | 29 (37%) | 43 (39%) |
# times in ER in past year | |||
 Mean (SD) no. visits/year | 2.6 (1.7) | 2.4 (1.4) | 2.4 (1.5) |
 Median (IQR) no. visits/year | 2.0 (2.0) | 2.0 (2.0) | 2.0 (2.0) |