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Table 2 Kidney-related Outcomes

From: Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

Characteristics

TSC-AML Patient Age < = 18 (N = 31)

TSC-AML Patient Age > 18 (N = 79)

Total TSC-AML Patients (N = 110)

Embolization (e.g., for kidney lesions)

2 (7%)

23 (29%)

25 (23%)

Nephrectomy (kidney removal)

2 (7%)

12 (15%)

14 (13%)

Kidney transplant

0 (0%)

13 (17%)

13 (12%)

Had impaired kidney function

4 (13%)

39 (49%)

43 (39%)

Had high blood pressure/hypertension

3 (10%)

35 (44%)

38 (35%)

Had chronic kidney disease

4 (13%)

30 (38%)

34 (31%)

Had kidney failure

0 (0%)

23 (29%)

23 (21%)

On dialysis

0 (0%)

17 (22%)

17 (16%)

AML tumor involvement

 In both kidneys

26 (84%)

60 (76%)

86 (78%)

 Only in one kidney

5 (16%)

19 (24%)

24 (22%)

  Multiple tumors

3 (60%)

4 (21%)

7 (29%)

  Only one tumor

2 (40%)

15 (79%)

17 (71%)

  1. AML Angiomyolipoma, TSC Tuberous sclerosis complex