Skip to main content

Table 3 Percentage of answers by category response in each item

From: Rasch analysis in the development of the NutriQoL® questionnaire, a specific health-related quality of life instrument for home enteral nutrition

Items

Never (%)

Sometimes (%)

Usually (%)

Always (%)

Does not apply to my current situation (%)

No answer (%)

1

I keep my habitual mealtimes because of HEN (e.g. breakfast, lunch, and dinner)

3.84%

6.41%

32.05%

51.92%

5.13%

0.64%

2

I can adjust HEN to unexpected events (e.g. leaving the house suddenly, an unscheduled visit).

6.41%

25.64%

17.31%

39.74%

9.61%

1.28%

3

I can feed myself with HEN and I do not have to be hospitalized for that.

3.85%

1.28%

6.41%

71.15%

15.38%

1.92%

4

I am forced to spend most of the day sitting or lying down for food because of HEN.

39.74%

10.90%

14.74%

12.82%

19.87%

1.92%

5

HEN suits my preferences (e.g. smell, temperature, and flavor).

6.41%

12.82%

23.72%

31.41%

25.00%

0.64%

6

I find HEN products suit my other health problems (e.g. products without sugar because I am diabetic, without salt because I am hypertensive).

9.62%

1.92%

8.33%

24.36%

53.21%

2.56%

7

Since I receive HEN, I move more easily; I feel more agile.

10.26%

16.03%

21.79%

28.85%

21.15%

1.92%

8

HEN damages my skin (e.g. dryness, irritation, infection).

52.56%

12.82%

1.92%

1.28%

30.13%

1.28%

9

HEN lets me eat away from home.

17.95%

18.59%

7.69%

39.10%

14.74%

1.92%

10

Since receiving HEN, I need more help with my personal hygiene (e.g. showering, dressing).

53.85%

6.41%

5.13%

6.41%

27.56%

0.64%

11

HEN lets me keep doing housework (e.g. cooking, ironing, cleaning).

5.13%

14.10%

10.90%

31.41%

37.18%

1.28%

12

HEN lets me enjoy my hobbies.

5.77%

18.59%

16.03%

38.46%

19.23%

1.92%

13

HEN hinders having sex.

32.05%

4.49%

2.56%

5.77%

52.56%

2.56%

14

Since receiving HEN, I have problems to travel several days.

42.95%

8.33%

3.21%

15.38%

28.85%

1.28%

15

After some time receiving HEN, I can think about going back to work.

13.46%

8.33%

2.56%

5.77%

67.31%

2.56%

16

HEN lets me go out with my friends.

10.26%

13.46%

14.10%

44.23%

16.67%

1.28%

17

Since receiving HEN, I have stopped going to family celebrations (e.g. weddings, birthdays).

50.00%

12.82%

5.77%

12.82%

16.67%

1.92%

18

HEN prevents me from sleeping well.

69.23%

12.18%

0.64%

1.92%

14.74%

1.28%

19

I have a good appetite because of HEN.

16.67%

28.85%

19.23%

23.72%

10.90%

0.64%

20

Since receiving HEN, I fend for myself; I can do more things without help.

9.62%

13.46%

25.00%

24.36%

26.92%

0.64%

21

Since receiving HEN, my physical appearance is improving (e.g. I look healthier).

6.41%

19.87%

25.00%

42.95%

5.13%

0.64%

22

I worry that my body is adapting to HEN and I will not be able to feed as before.

21.15%

17.31%

7.05%

22.44%

30.77%

1.28%

23

I miss chewing and tasting food because of HEN.

14.74%

12.82%

5.77%

32.05%

33.33%

1.28%

24

Since receiving HEN, I find it a sacrifice to prepare food for others.

26.28%

8.33%

3.85%

4.49%

55.13%

1.92%

25

I need help to eat because I cannot do it alone with HEN.

47.44%

4.49%

3.85%

10.90%

32.05%

1.28%

26

My food preparation is simpler because of HEN.

14.10%

10.90%

5.77%

26.28%

39.74%

3.20%

27

I have physical discomfort because of HEN (e.g. bloating, heartburn, dry mouth, regurgitation).

46.15%

35.26%

5.77%

7.05%

5.13%

0.64%

28

Getting HEN products is simple (i. e. they are available in pharmacies and I can easily get the preparation).

5.77%

5.77%

15.38%

67.31%

4.49%

1.28%

29

I find it unpleasant to eat with other people because of HEN.

53.85%

9.62%

3.85%

8.97%

21.79%

1.92%

30

HEN lets me eat with my family.

14.74%

13.46%

8.97%

46.15%

14.10%

2.56%

31

I limit activities with my friends to those that are not food-related because of HEN.

38.46%

10.90%

8.97%

14.10%

25.00%

2.56%

32

I sense that others feel bad about me because of HEN.

50.64%

14.74%

7.05%

7.05%

18.59%

1.92%

33

Since receiving HEN, my family is more worried about my health.

44.23%

17.31%

10.26%

19.23%

7.69%

1.28%

34

Since receiving HEN, my family watches over my food.

14.10%

19.23%

14.10%

44.23%

7.69%

0.64%

35

Since receiving HEN, I have to explain how I feed.

37.82%

31.41%

8.33%

5.13%

15.38%

1.92%

36

Receiving HEN causes me an added problem.

60.90%

17.31%

7.05%

6.41%

7.05%

1.28%

37

Since receiving HEN, I feel stronger and more energetic.

7.05%

23.72%

23.72%

39.10%

5.13%

1.28%

38

Since receiving HEN, I am more worried about my health.

43.59%

22.44%

8.97%

11.54%

10.90%

2.56%

39

Since receiving HEN, I feel sad.

60.26%

21.15%

3.85%

3.85%

8.97%

1.92%

40

I would change the HEN administration route (e.g. From nasogastric tube to oral administration).

46.79%

5.13%

0.64%

9.62%

34.62%

3.20%

41

I trust I am well-nourished because of HEN.

1.28%

2.56%

12.82%

80.14%

1.92%

1.28%

42

I have gained weight because of HEN.

11.54%

28.21%

17.31%

36.54%

3.21%

3.20%

43

I have adapted to receiving HEN.

2.56%

6.41%

23.72%

64.10%

1.28%

1.92%