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Table 1 Items description

From: Rasch analysis in the development of the NutriQoL® questionnaire, a specific health-related quality of life instrument for home enteral nutrition

 

Wording of part a

Item 1

I keep my habitual mealtimes because of HEN (e.g. breakfast, lunch, and dinner)

Item 2

I can adjust HEN to unexpected events (e.g. leaving the house suddenly, an unscheduled visit).

Item 3

I can feed myself with HEN and I do not have to be hospitalized for that.

Item 4

I am forced to spend most of the day sitting or lying down for food because of HEN.

Item 5

HEN suits my preferences (e.g. smell, temperature, and flavor).

Item 6

I find HEN products suit my other health problems (e.g. products without sugar because I am diabetic, without salt because I am hypertensive).

Item 7

Since I receive HEN, I move more easily; I feel more agile.

Item 8

HEN damages my skin (e.g. dryness, irritation, infection).

Item 9

HEN lets me eat away from home.

Item 10

Since receiving HEN, I need more help with my personal hygiene (e.g. showering, dressing).

Item 11

HEN lets me keep doing housework (e.g. cooking, ironing, cleaning).

Item 12

HEN lets me enjoy my hobbies.

Item 13

HEN hinders having sex.

Item 14

Since receiving HEN, I have problems to travel several days.

Item 15

After some time receiving HEN, I can think about going back to work.

Item 16

HEN lets me go out with my friends.

Item 17

Since receiving HEN, I have stopped going to family celebrations (e.g. weddings, birthdays).

Item 18

HEN prevents me from sleeping well.

Item 19

I have a good appetite because of HEN.

Item 20

Since receiving HEN, I fend for myself; I can do more things without help.

Item 21

Since receiving HEN, my physical appearance is improving (e.g. I look healthier).

Item 22

I worry that my body is adapting to HEN and I will not be able to feeding as before.

Item 23

I miss chewing and tasting food because of HEN.

Item 24

Since receiving HEN, I find it a sacrifice to prepare food for others.

Item 25

I need help to eat because I cannot do it alone with HEN.

Item 26

My food preparation is simpler because of HEN.

Item 27

I have physical discomfort because of HEN (e.g. bloating, heartburn, dry mouth, regurgitation).

Item 28

Getting HEN products is simple (i. e. they are available in pharmacies and I can easily get the preparation).

Item 29

I find it unpleasant to eat with other people because of HEN.

Item 30

HEN lets me eat with my family.

Item 31

I limit activities with my friends to those that are not food-related because of HEN.

Item 32

I sense that others feel bad about me because of HEN.

Item 33

Since receiving HEN, my family is more worried about my health.

Item 34

Since receiving HEN, my family watches over my food.

Item 35

Since receiving HEN, I have to explain how I feed.

Item 36

Receiving HEN causes me an added problem.

Item 37

Since receiving HEN, I feel stronger and more energetic.

Item 38

Since receiving HEN, I am more worried about my health.

Item 39

Since receiving HEN, I feel sad.

Item 40

I would change the HEN administration route (e.g. From nasogastric tube to oral administration).

Item 41

I trust I am well-nourished because of HEN.

Item 42

I have gained weight because of HEN.

Item 43

I have adapted to receiving HEN.