Fig. 2

Juvenile metachromatic leukodystrophy conceptual disease model. Content in italics denote the 15 concepts represented in the IMPA scale. While this model depicts both physical and nonphysical functioning effects and ADL impacts, the goal of the IMPA scale was to measure observable impairments in physical functioning. *This model was based on an early model developed in the previous research and modified based on the research conducted in the current study. IMPA = Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities