All Respondents (N = 30) | ||
---|---|---|
First Diagnosed with SAA, N (%) | ||
2 or fewer years ago | 15 | (50.0%) |
3 to 4 years ago | 8 | (26.7%) |
5 or more years ago | 7 | (23.3%) |
Symptoms and Complications,a N (%) | ||
Fatigue (interferes with daily activities like work and school) | 26 | (86.7%) |
Infections requiring hospitalization | 16 | (53.3%) |
Bleeding | 16 | (53.3%) |
Number of Treatments Received after SAA Diagnosis, N (%) | ||
1–3 | 13 | (43.3%) |
4–5 | 10 | (33.3%) |
6 or more | 7 | (23.3%) |
Types of Treatments Received after SAA Diagnosis,a N (%) | ||
Immunosuppressive therapies | 29 | (96.7%) |
Steroids | 24 | (80.0%) |
Targeted therapy | 17 | (56.7%) |
Antibiotics | 17 | (56.7%) |
Antifungals | 14 | (46.7%) |
Bone marrow transplant | 10 | (33.3%) |
Erythropoiesis-stimulating agents/growth factors | 9 | (30.0%) |
Red Blood Cell or Whole Blood Transfusions Frequency, N (%) | ||
Have not received red blood cell transfusions in the past 3 months | 16 | (53.3%) |
Once every 31–90 days | 4 | (13.3%) |
Once every 15–30 days | 5 | (16.7%) |
Once every 8–14 days | 5 | (16.7%) |
Once per week | 0 | (0.0%) |
More than once per week | 0 | (0.0%) |
Platelet Transfusions Frequency, N (%) | ||
Have not received platelet transfusions in the past 3 months | 21 | (70.0%) |
Once every 31–90 days | 3 | (10.0%) |
Once every 15–30 days | 1 | (3.3%) |
Once every 8–14 days | 2 | (6.7%) |
Once per week | 3 | (10.0%) |
More than once per week | 0 | (0.0%) |
Received Iron Chelation Therapy, N (%) | 11 | (36.7%) |