Table 3 Frequency of symptoms reported during CE interviews (n = 41) when patients were asked to describe what symptoms they experience as a result of lupus
Symptom | Reported spontaneously, n (%) | Reported in response to specific probing, n (%) | Total, n (%)a |
|---|---|---|---|
Fatigue | 35 (85) | 5 (12) | 40 (98) |
Joint pain | 34 (83) | 4 (10) | 38 (93) |
Rash | 19 (46) | 17 (41) | 36 (88) |
Swelling of hand, fingers, feet or legs | 16 (39) | 17 (41) | 33 (80) |
Joint stiffness/cramps | 21 (51) | 12 (29) | 33 (80) |
Cognitive/focus/memory issues | 9 (22) | 17 (41) | 26 (63) |
Headaches | 9 (22) | 14 (34) | 23 (56) |
Muscle pain/achiness | 15 (37) | 0 | 15 (37) |
Fevers/hot flashes | 14 (34) | 0 | 14 (34) |
Dry/itchy skin | 9 (22) | 0 | 9 (22) |
Chills | 9 (22) | 0 | 9 (22) |
Decreased appetite/weight loss | 8 (20) | 0 | 8 (20) |
Hair loss | 8 (20) | 0 | 8 (20) |
Raynaud’s | 8 (20) | 0 | 8 (20) |
Mouth sores | 7 (17) | 0 | 7 (17) |
Numbness/tingling | 7 (17) | 0 | 7 (17) |
Weakness/decreased muscle strength | 3 (7) | 4 (10) | 7 (17) |
Dry eyes/vision issues | 6 (15) | 0 | 6 (15) |
Nausea/vomiting | 6 (15) | 0 | 6 (15) |
Shortness of breath | 6 (15) | 0 | 6 (15) |
Coughing/wheezing | 4 (10) | 0 | 4 (10) |
High blood pressure | 3 (7) | 1 (2) | 4 (10) |
Muscle stiffness/cramps | 4 (10) | 0 | 4 (10) |
Rapid heart rate | 4 (10) | 0 | 4 (10) |
Weight gain | 0 | 4 (10) | 4 (10) |
Dizziness | 3 (7) | 0 | 3 (7) |
Bladder issues | 2 (5) | 0 | 2 (5) |
Insomnia | 2 (5) | 0 | 2 (5) |
Night sweats | 2 (5) | 0 | 2 (5) |
Nose bleeds | 2 (5) | 0 | 2 (5) |
Tremors/twitching | 2 (5) | 0 | 2 (5) |
Bone pain | 1 (2) | 0 | 1 (2) |
Dry mouth | 1 (2) | 0 | 1 (2) |
Panic attacks | 1 (2) | 0 | 1 (2) |
Seizures | 1 (2) | 0 | 1 (2) |