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Table 4 Comparison of methods according to the most severe, frequent, and bothersome AS symptoms

From: A comparison of three methods to generate a conceptual understanding of a disease based on the patients’ perspective

 

Most Frequent

Most Severe

Most Impactful

How was this Identified?

CE interviews (N = 12)

Fatigue

Neck pain

Lower back pain

Shoulder pain

Lower back pain

Neck pain

Lower back pain

Shoulder pain

Neck pain

Specifically probed during interview as each symptom was mentioned

Social media review (N = 100 posts)

Unable to determine based on postsreviewed

Fatigue

Lower back pain

Unable to determine based on posts reviewed

If described within chatroom post.

GCM (N = 16) (Average rating data)

Fatigue (2.4)

Stiff neck (2.4)

Restricted spine movement (2.2)

Fatigue (2.6)

Stiff neck (2.4)

Stiff back (2.1)

Fatigue (1.6)

Neck pain (1.4)

Stiff neck (1.4)

Based on ‘ratings’ data (stage 3 of GCM)

  1. AS ankylosing spondylitis, CE concept elicitation, GCM group concept mapping